Living with Hemophilia (series) |
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Accredo’s Hemophilia Health Services, 2008 Age-specific educational booklets cover developmental events of different life stages: 0–12 months, 1–5 years, 6–11 years, 12–18 years, adult. |
An Educator’s Guide to Bleeding Disorders |
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Accredo’s Hemophilia Health Services, 2008 Gives educators a general overview of bleeding
disorders; answers common questions about recognizing
and responding to bleeds. Includes list of risk categories of
sports and activities; fill-in page for parents to note critical contact
information in the event of a bleed. |
A Coach’s Guide to Bleeding Disorders |
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Ruth Mulvany, MS, PT, 2008 For sports coaches, scout leaders, physical education teachers who supervise students with a bleeding disorder. Includes overview of bleeding disorders; guidelines for recognizing and responding to bleeds; list of risk categories of sports and activities. |
A Guide to Venous Access Devices |
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Accredo’s Hemophilia Health Services, 2008 Outlines types of venous access devices for people with hemophilia, highlighting major benefits and drawbacks. Co-sponsored by Bayer HealthCare: www.kogenatefs.com. |
Dental Care for Infants, Toddlers and Preschoolers with Bleeding Disorders |
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CSL Behring Choice Support Center, 2010 Three-part series on dental care for individuals and families with bleeding disorders. |
Dental Care for Children and Teens with Bleeding Disorders: Ages 5 to 18 |
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CSL Behring Choice Support Center, 2010 Three-part series on dental care for individuals and families with bleeding disorders. |
Dental Care for Adults with Bleeding Disorders |
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CSL Behring Choice Support Center, 2010 Three-part series on dental care for individuals and families with bleeding disorders. |
Educational Support Brochures |
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Novo Nordisk Inc. Topics include introduction to inhibitors, surgery, traveling with inhibitors, ER visits, school teen issues, adult issues. |
Living with Hemophilia B |
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Pfizer Colorful, comprehensive overview of hemophilia B. Topics include genetic transmission, carrier testing, treatment, resources, bleed symptoms, joint care, physical activities, hemophilia as your child grows. |
B2B Speaking from Experience |
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Coalition for Hemophilia B, 2006 Colorful booklet for adults and teens shares personal experiences of factor IX deficient patients. User-friendly information for people already living successfully with hemophilia B. Sponsored by Pfizer: www.hemophiliavillage.com |
B2B Speaking from Experience: A Guide for Mature Adults |
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Coalition for Hemophilia B, 2007 Provides helpful knowledge for making informed life decisions and remaining healthy today and in future. Sponsored by Pfizer: www.hemophiliavillage.com |
B2B Speaking from Experience: A Guide to the Preteen Passage |
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Coalition for Hemophilia B, 2009 Provides parents and caregivers of preteens with hemophilia B a “heads up” about the future from parents and caregivers who have raised preteens with hemophilia B. Sponsored by Pfizer: www.hemophiliavillage.com |
B2B Perspectives on Hemophilia B in Early Childhood |
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Coalition for Hemophilia B, 2010 Tips from parents who have raised infants, toddlers, and preschoolers with hemophilia B; insight from medical professionals who treat children with hemophilia B. Sponsored by Pfizer: www.hemophiliavillage.com |
Hemophilia B: From Your Point of View |
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Coalition for Hemophilia B, 2010 Tips from peers with hemophilia B on dealing with challenges during adolescent and teen years. Sponsored by Pfizer: www.hemophiliavillage.com |
