Managing Your Child's Inhibitor |
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This book covers extensively from the parents' and patients' point of view, topics such as pain management, surgery, family life and treatment. $18.95 plus shipping and handling. Managing Your Child's Inhibitor was funded by an unrestricted grant from Novo Nordisk. |
Raising a Child With Hemophilia: A Practical Guide for Parents |
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Laureen A. Kelley, 2007 Fourth edition of the world's first parenting book on hemophilia written by a parent of a child with hemophilia. Practical, easy-to-understand information on medical treatment, genetic transmission, child development, consumer issues, school, sports. Includes stories and advice from experienced parents, compiled from interviews with more than 180 families. Sponsored by CSL Behring: www.cslbehring.com |
A Guide to Living With von Willebrand Disease |
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Renée Paper, R.N., with Laureen A. Kelley, The world's first book on the world's most commonly inherited bleeding disorder. Topics include learning to cope with VWD, inheritance, the medical system, treatment, women's issues, health insurance. Complete resource guide and real-life stories. Sponsored by CSL Behring: www.cslbehring.com |
Teach Your Child About Hemophilia |
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Laureen A. Kelley, 2007 In-depth exploration of the way children think and understand hemophilia as they mature. Examines children's understanding of hemophilia concepts at different ages: cuts, healing, blood, severity levels, blood clotting, infusions, genetic transmission. Fascinating look at the way children on prophylaxis understand hemophilia. Prepares parents to appropriately answer children's questions and encourage independence. Sponsored by CSL Behring: www.cslbehring.com |
Raising a Child With Hemophilia in Latin America |
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Laureen A. Kelley with Ana L. Narváez, 2006 First book about hemophilia in Latin America. Based on interviews with dozens of families and patients in five countries. Written for parents by a parent of a child with hemophilia. Topics include differences in hemophilia treatment, genetics, transmission, family dynamics, government policies, being a smart consumer, medical complications. Download English Version Sponsored by Baxter Healthcare Corporation: www.thereforyou.com |
Success as a Hemophilia Leader |
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Laureen A. Kelley, 2004 World's first guide to founding, managing and growing a grassroots hemophilia organization, or improving an existing one. Valuable advice on creating vision and mission, forming a board, fundraising, producing a newsletter, programming, establishing an office, working with a medical advisory board. |
A Consumer's Guide to Bleeding Disorder Products |
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LA Kelley Communications, Inc., 2011 Comparative, concise guide to all factor concentrate and specialty products for bleeding disorders. Designed for consumers. Factor VIII, factor IX, factor IX complex, inhibitor and VWD products are color-coded and easy to cross-reference. Binder can be inverted as a stand for flip-chart teaching. Sponsored by Factor Support Network: www.factorsupport.com |
