Hemophilia in Pictures |
||
 |
World Federation of Hemophilia, 2005 Pictorial guide to hemophilia for healthcare workers, parents and patients reflects the multicultural diversity of the global hemophilia community. Useful for teaching people with low literacy levels. Includes teaching notes. |
|
Living with Hemophilia (series) |
||
|
2005 Series covers events and information needed for different life stages: 0-12 months, 1-5 years, 6-11 years, 12-18 years, 19-50 years, and 50+ years. |
|
Your Child's Hemophilia (series) |
||
|
2001 Three-part series for parents about what to expect during different phases of children’s development. Series includes Your Child’s Hemophilia: What to Expect During Infancy; Your Child's Hemophilia: What to Expect During the School Age Years; Hemophilia: The Young Adult Years. |
|
Basic Concepts of Hemophilia: A Self-Study and Planning Workbook for Families with a New Diagnosis of Hemophilia |
||
|
Butler, Regina; Crudder, Sally O.; Riske, Brenda;
Toal, Susan,
2001 Large-format workbook on hemophilia basics for parents of children, adolescents and young adults with hemophilia. Intended for use as part of an educational program with HTC staff. |
|
Hemophilia: An Internet Resource Guide |
||
 |
2006 Review of hemophilia, the internet, and how to research hemophilia information on the internet through websites devoted to hemophilia. |
|
Living with Hemophilia B |
||
 |
Wyeth Pharmaceuticals Colorful and comprehensive overview of hemophilia B. Topics include genetic transmission, carrier testing, treatment, resources, symptoms of bleeds, joint care, physical activities, and hemophilia as your child grows. |
|
A Family Guide to Hemophilia B |
||
 |
2005 Discusses the unique challenges faced by families living with hemophilia B. Read about treatments and recent advances. Easy-to-understand dosing tools and exercise guides help you grow stronger. See how to self-infuse with easy-to-follow directions. |
|
von Willebrand Disease (VWD): A Patient's Guide to Understanding |
||
 |
2005 Easy-to-read booklet about VWD symptoms, testing, diagnosis and treatment. |
|
Dental Care (Series) |
||
|
2005 Four-part series on dental care, primarily for people and families with hemophilia A, hemophilia B and VWD. Dental Care for Infants, Toddlers, and Preschoolers with Bleeding Disorders. Dental Care for Children With Bleeding Disorders: Ages 5 to 10. Dental Care for Adolescents With Bleeding Disorders: Ages 11 to 18. Dental Care for Adults with Bleeding Disorders. |
|
The Gift of Experience: Conversations About Hemophilia |
||
|
2007 The result of an oral history project, this hardcover book is a compilation of quotes extracted from the transcripts of 21 hemophilia patients ages 40 and older who are treated at the BHC. Also included are quotes from doctors, nurses and a social worker who cared for patients for 40 years. The stories share life with hemophilia during a time of HIV and hepatitis C infections, and are insightful testaments to optimism, determination and resilience. The book also offers practical advice for families coping with hemophilia today and inspiration for those facing chronic illness. |
|
B2B Speaking from Experience |
||
|
2006 Colorful booklet for adult and teen “B” patients shares the personal experiences of factor IX deficient patients. Developed using recommendations from the Wyeth Consumer Advisory Board. User-friendly and packed with information designed to reach those already living successfully with hemophilia B. |
|
College Survival 101: Managing Your Hemophilia Away From Home |
||
|
2005 Short but powerful guide to leaving home and preparing for school. Topics include strategies for starting school, meeting your college roommate, disclosing hemophilia, studying, staying fit, networking, and avoiding the “Freshman 15.” Jazzy and compact guide for teens. |
|
Infusion Time |
||
 |
Horbacz, Diane, 1998 Interactive book helps children with Port-A-Caths® understand the infusion process. Rhymes and tactile features make learning about infusion fun. Ages 3 to 11. Sponsored by Bayer HealthCare. |
|
My Brother is Getting a New Port! |
||
 |
Horbacz, Diane, 2000 Story of a boy living with hemophilia who infuses his factor via a port, and helps prepare his younger brother with hemophilia for surgery. Sponsored by Bayer HealthCare. |
|
Fun Time with Welligan Hugsley |
||
 |
Hemophilia Health Services Colorful activity book with games, puzzles and activities teaches children about hemophilia. Includes box of four crayons. Contains Spanish instructions.
|
|
If You Wear a MedicAlert |
||
 |
Hemophilia Health Services Addresses the challenges faced by children on prophylaxis when talking to their peers about hemophilia. As two young baseball teammates chat, key communicative words are repeated, helping to foster communication skills. Sponsored by Bayer HealthCare. |
|
The Great Inhibinator |
||
 |
Perretti Barnes, Chris BioRX BioRX has teamed with Bayer HealthCare to present a book for school-age children about Nate, a boy who discovers he has an inhibitor. Colorfully illustrated story centers on creating a Halloween costume. |
|
Bob the Puppet Has His Annual Checkup |
||
 |
Wyeth Pharmaceuticals One in a series of hardcover books. Bob the Puppet has hemophilia, and visits an HTC to get a routine physical. Positive, colorful and easy-to-read book should open a discussions between parents and children about clinic visits and hemophilia. Ages 4 to 7. |
|
Bob the Puppet's Coloring Book |
||
 |
2005 Coloring book for preschool and young school-age children follows Bob the Puppet, who has hemophilia, as he explores various activities. |
|
Diane Dino's Dilemma |
||
 |
Shapiro, Jane Colorful storybook features a dinosaur with von Willebrand Disease. Topics include definitions, doctor’s visits, sports, blood clotting and treatment. For school-age children. | |
Rafting Rescue! |
||
 |
Zappa, Susan; Cantini, Madeline; du Treil, Sue; Kuebler, Ed; Wulff, Karen, 2004 Chapter book about adventures at camp and how to handle and treat VWD. For older school-age children. |
|
