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Inside a Bleeding Joint

Book - Inside the Bleeding

Bayer HealthCare
Biological Products
400 Morgan Lane
West Haven, CT 06516-4175
www.kogenatefs.com
Free

A child describes hemophilia and its symptoms. Details how joints work, joint bleeds and damage, self-infusion, and the importance of early detection of bleeds. For children, schools and summer camps. Animated.


Infusion Tracker 2

Infusion Tracker CD

NuFACTOR
1093 County Center Drive
Temecula, CA 92591
(800) 323-6832
http://www.nufactor.com/
pages/hemophilia.html

Free

Software program helps patients record, analyze and visualize bleeding episodes for selected range of dates, on color-coded map of the body. Helps patients identify target joints; track prophylaxis schedule effectiveness; learn seasonal bleeding patterns; document factor usage and record lot numbers permanently; review statistics and print usage reports. PC or Macintosh format.


Joint Health CD ROM

Infusion Tracker CD

Baxter BioScience
1627 Lake Cook Road
Deerfield, IL 60015
(866) 433-9284
www.hemophiliagalaxy.com
Free

Discusses how joints work, the benefits of exercise, and advice for sticking with a treatment plan. Includes tips from patients, parents and healthcare professionals.


Function of FVIII at the Site of Bleeding

Bayer HealthCare
Biological Products
400 Morgan Lane
West Haven, CT 06516-4175
www.kogenatefs.com
Free

Patient-friendly video illustrates and explains the role of factor VIII in repairing a bleed. Describes the formation of a clot and the role of the factor VIII molecule. Walks viewers through the life of an adult patient and the role the molecule plays in his life.


Every Step of the Way

Bayer HealthCare
Biological Products
400 Morgan Lane
West Haven, CT 06516-4175
www.kogenatefs.com
Free

Animated “Factor 8” character connects with Jimmy, who has factor VIII deficiency, in an online chat room. Factor 8 guides Jimmy through the factor VIII manufacturing process, including a virtual tour of state-of-the-art Berkeley Facility. Translates highly technical manufacturing processes into an entertaining, straightforward, step-by-step overview.


A Bright Future

Blank video

Inalex Communications
38 East Ridgewood Ave #244
Ridgewood, NJ, 07450
(201) 493-1399
Toll-free (866) 802-0304
www.inalex.com

DVD that includes testimonials from parents on how they felt and coped with the diagnosis of hemophilia, to inspire new parents to overcome fear and doubt and better handle hemophilia. Sponsored by Baxter BioScience.


The Winning Spirit

Blank video

1993

Delaware Chapter of NHF
222 South Easton Road, Suite 107
Glenside, PA 19038
(215) 885-6500
Free

Describes what new parents should expect from hemophilia: initial feelings after the diagnosis, developmental stages, what happens inside during a bleed, factor therapy, sports and activities, and keeping life normal. 20 minutes.

   



Educating, Empowering, Elevating