What is hemophilia?

How rare is hemophilia?

How does blood clot?

Why do people with hemophilia continue to bleed?

What happens when someone with hemophilia gets cut?

What happens when someone with hemophilia is injured internally?

How does clotting factor work?

Do some people with hemophilia bleed more often than others?

Are there different types of hemophilia?

What activities can people with hemophilia do?

How do people get hemophilia?
(Level 1)


How do people get hemophilia?
(Level 2)


Can hemophilia be cured?

Other questions you may be asked

Glossary

How rare is hemophilia?

One out of 8,000 newborn baby boys is born with hemophilia. So about one in 8,000 male births will be a boy with hemophilia. Females also have hemophilia although it is far less frequent than in males.

A Rare Disorder

Disease Description Occurrence in General Population
Cystic fibrosis Lungs clog with mucus 1 in 2,500
Hemophilia Blood fails to clot properly 1 in 16,000 (1 in 8,000 male births)
Alzheimer's Degenerative disease of the central nervous system 1 in 63
Diabetes Failure to break down sugar 1 in 52
Down syndrome Extra chromosome causes developmental delays >1 in 1,00

How many people have hemophilia in the United States? About 17,000. That may seem like a lot of you. But out of a total population of over 250 million, this number represents much, much less than 1% of the population. You are more likely to meet a person with Down syndrome, epilepsy, diabetes or cystic fibrosis than someone with hemophilia.

Adapted from Tell Them the Facts! By Laureen A. Kelley, 1995




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