How rare is hemophilia?

One out of 8,000 newborn baby boys is born with hemophilia. So about one in 8,000 male births will be a boy with hemophilia. Females also have hemophilia although it is far less frequent than in males.

A Rare Disorder

Disease Description Occurrence in General Population
Cystic fibrosis Lungs clog with mucus 1 in 2,500
Hemophilia Blood fails to clot properly 1 in 16,000 (1 in 8,000 male births)
Alzheimer's Degenerative disease of the central nervous system 1 in 63
Diabetes Failure to break down sugar 1 in 52
Down syndrome Extra chromosome causes developmental delays >1 in 1,000

How many people have hemophilia in the United States? About 17,000. That may seem like a lot of you. But out of a total population of over 250 million, this number represents much, much less than 1% of the population. You are more likely to meet a person with Down syndrome, epilepsy, diabetes or cystic fibrosis than someone with hemophilia.

Adapted from Tell Them the Facts! By Laureen A. Kelley, 1995