PEN Archives

November 2012 - Volume 22 Issue 4

Parent Empowerment Newsletter - August 2012

The Jobs Journal: Working with Hemophilia

Inside PEN

  • As I See It: Following My Dream
  • Inhibitor Insights:Tired of Being Special
  • Richard's Review: Living Lab for Hemophilia
  • Project SHARE: Working with Georgia

August 2012 - Volume 22 Issue 3

Parent Empowerment Newsletter - August 2012

Problems in Paradise? Hemophilia in Our ď51st State"

Inside PEN

  • As I See It: Yo Soy Americano
  • Inhibitor Insights: ITI Budget Constraints
  • Richard's Review: Vampiros y Hemofilia
  • Pulse on the Road: Saving a Life on a Remote Island

Download the English version of Richard's Review: Vampires and Hemophilia

May 2012 - Volume 22 Issue 2

Hemophilia Renaissance: New Treatments & Gene Therapy

Inside PEN

  • As I See It: Hemophilia the Second Time Around
  • Inhibitor Insights: Wishful Thinking
  • Richard's Review: Hemophilia in Science Fiction
  • Pulse on the Road: Aloha!

February 2012 - Volume 22 Issue 1

Private Parts: Is Your Personal Health Information Exposed?

Inside PEN

  • As I See It: Health Database Built on Partnerships
  • Inhibitor Insights: Guarding Your Personal Info
  • Richard's Review: Guitarist with Hemophilia Inspires Novelist
  • Project SHARE : $6.5 Million Program
  • Pulse on the Road: 2011 Travel Wrap-up

Pulse Archives

May 2012

PEN's Insurance Pulse - May 2012

Mastering Your Fears:
What's in Your Insurance Policy?


  • Welcome
  • Transitions: Preparing New Leaders
  • Tracks & Trends
  • Ask the Expert: Where Can I Get Help with My Insurance Policy?
  • Real Life: Fighting for Insurance
  • Community Forum: Resources for Navigating Insurance Reform