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HemAware

HemAware

The National Hemophilia Foundation
116 West 32nd Street, 11th Floor
New York, NY 10001
(212) 328-3700 or (800) 42-HANDI
www.hemophilia.org
Free with paid NHF membership

Quarterly. Articles on hemophilia medical research and treatment in areas of social work, physical therapy, orthopedics and dental nursing. Articles for families; community event information.

 


Bloodstone Magazine

Hemophilia Health Services
201 Great Circle Road
Nashville, TN 37228
(800) 800-6606
www.hemophiliahealth.com
Free

Quarterly. In-depth hemophilia information covering news, insurance, Q&A, treatment and psychosocial issues. Presents positive view of living with hemophilia. Features Welligan Hugsley color comic strip for children.


Factor Nine News

Coalition for Hemophilia B
225 West 34th Street, Suite 710
New York, NY 10012
(212) 554-6800
Free

Quarterly. Brief newsletter features latest news and treatment for hemophilia B. From nonprofit organization dedicated to improving quality of life for people with hemophilia B by supporting research and education, and liaison with the pharmaceutical industry.


Dateline Federation

Hemophilia Federation of America (HFA)
1405 West Pinhook, Suite 101
Lafayette, LA 70503
(337) 261-9787 or (800) 230-9797
fax: 337-261-1787
www.hemophiliafed.org
Free

Quarterly. Healthcare information about bleeding disorders: government and healthcare events, innovative programs and upcoming events.


Quest

Coram Hemophilia Services
6 Spring Mill Drive
Malvern, PA 19355
(800) 992-4091
Free to families

Quarterly. Newsletter features patient profiles, news, and new products and services from Coram, a home healthcare company for hemophilia patients.


Wyeth Lifelines

Wyeth Pharmaceuticals
500 Arcola Road
Collegeville, PA 19426
(800) 944-1433
www.hemophiliavillage.com
Free

Bimonthly. Newsletter includes helpful information about hemophilia treatment and tips for living an active life, including inspirational stories from people living with hemophilia. Describes the latest programs and services available from Wyeth. Available in hard copy or as an e-newsletter.


Bloodstone Mini

Hemophilia Health Services
201 Great Circle Road
Nashville, TN 37228
(800) 800-6606
www.HemophiliaHealth.com
Free

Bloodstone Mini presents the Welligan Hugsley gang in a colorful magazine for children.


Post Script Informer

PSI
P.O. Box 1602
Midlothian VA 23113
www.uneedpsi.org

The quarterly newsletter of Patients Services, Inc., a nonprofit organization that specializes in providing temporary insurance coverage to those with chronic medical conditions who face loss of insurance. The PSI newsletter provides up to date information on insurance changes for those with chronic disorders.


Voices Uninhibited

Novo Nordisk
www.novonordisk-us.com/biopharm

Quarterly. The first newsletter devoted solely to the inhibitor community that provides treatment information, events, patient stories, Q&A, new resources.




Educating, Empowering, Elevating