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TFY

Baxalta
www.baxaltahematology.com

Quarterly. Inspirational stories about families with hemophilia; product information from Baxalta.

HemAware

National Hemophilia Foundation
www.hemophilia.org

Bimonthly. Newsletter of largest US hemophilia nonprofit. Articles on bleeding disorder medical research and treatment; articles for families; reports on community events.

Dateline Federation

Hemophilia Federation of America (HFA)
www.hemophiliafed.org

Quarterly. News magazine of second largest national hemophilia nonprofit. Healthcare information about bleeding disorders, government, healthcare events, innovative programs.

The Villager

Pfizer
www.hemophiliavillage.com
Hard copy or e-newsletter.

Bimonthly. Information about hemophilia treatment; tips for living an active life; inspirational stories from people living with hemophilia; latest programs and services from Pfizer.

One Voice

One Voice

Save One Life
www.saveonelife.net

Quarterly. Newsletter of Save One Life, a nonprofit founded by Laurie Kelley, which provides individual child sponsorships to children with bleeding disorders in impoverished countries.

The Source Magazine

Plasma Protein Therapeutics Association
(PPTA)
www.pptaglobal.org

Quarterly. Information about the global plasma protein therapeutics industry. Includes interviews with key leaders; guest articles on safety and innovation; stories about patients and plasma donors; US and European legislative and regulatory topics.

Hemophilia World

Hemophilia World

World Federation of Hemophilia (WFH)
www.wfh.org

Triannual. Articles on WFH activities and what hemophilia organizations around the world are doing to improve care.

Post Script Informer

Patient Services, Inc. (PSI)
www.uneedpsi.org

Quarterly. Newsletter of nonprofit that helps people with certain chronic illnesses or conditions locate suitable health insurance coverage and access ways to satisfy expensive co-payments. Up-to-date information on insurance changes for people with chronic disorders.

COTT News

 

Committee of Ten Thousand (COTT)
www.cott1.org

Quarterly. Information, reports, viewpoints about issues and events important to grassroots healthcare advocacy and support; focus on political and policy events in Washington, DC.

Factor Nine News

Coalition for Hemophilia B
www.coalitionforhemophiliab.org

Quarterly. Brief newsletter features latest news and treatment for hemophilia B; community events.

eNotes

 

National Hemophilia Foundation
www.hemophilia.org

Monthly. Electronic newsletter informs the community on current medical breakthroughs, blood safety, advocacy updates, industry information, community news.

Factor in Wellness

OptionCare
www.optioncare.com

Quarterly. Latest news and treatments for people living with bleeding disorders; articles from patient/parent perspectives.