Additional Resources - Periodicals |
Living With Hemophilia |
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Bayer HealthCare
www.LivingWithHemophilia.com
Quarterly. Electronic newsletter features expert
advice; columns from hemophilia community
members; practical tips for living with hemophilia. |
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eNotes |
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National Hemophilia Foundation
www.hemophilia.org
Monthly. Electronic newsletter informs the community on
current medical breakthroughs, blood safety, advocacy
updates, industry information, community news. |
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HemAware |
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National Hemophilia Foundation
www.hemophilia.org
Bimonthly. Newsletter of largest US hemophilia
nonprofit. Articles on bleeding disorder
medical research and treatment; articles for
families; reports on community events. |
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Bloodstone Magazine |
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Accredo’s Hemophilia Health Services
www.HemophiliaHealth.com
Semi-annual. Articles on living with
hemophilia; profiles of families and
people; Q&A and news. |
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Factor Nine News |
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Coalition for Hemophilia B
www.coalitionforhemophiliab.org
Quarterly. Brief newsletter features latest
news and treatment for hemophilia B;
community events. |
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Dateline Federation |
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Hemophilia Federation of America (HFA)
www.hemophiliafed.org
Quarterly. News magazine of second largest
national hemophilia nonprofit. Healthcare
information about bleeding disorders,
government, healthcare events,
innovative programs. |
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COTT News |
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Committee of Ten Thousand (COTT)
www.cott1.org
Quarterly. Information, reports, viewpoints about issues and
events important to grassroots healthcare advocacy and support;
focus on political and policy events in Washington, DC. |
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Quest |
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Coram Hemophilia Services
www.coramhemophilia.com
Quarterly. Newsletter from home healthcare
company for hemophilia patients features patient
profiles, news, new products and services. |
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Pfizer Lifelines |
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Pfizer
www.hemophiliavillage.com
Hard copy or e-newsletter.
Bimonthly. Information about hemophilia treatment;
tips for living an active life; inspirational
stories from people living with hemophilia; latest programs and
services from Pfizer. |
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Post Script Informer |
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Patient Services, Inc. (PSI)
www.uneedpsi.org
Quarterly. Newsletter of nonprofit that helps
people with certain chronic illnesses or conditions
locate suitable health insurance coverage
and access ways to satisfy expensive
co-payments. Up-to-date information on
insurance changes for people with chronic disorders. |
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Voices Uninhibited |
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Novo Nordisk Inc.
www.novonordisk-us.com/biopharm
Quarterly. First newsletter devoted solely to the
inhibitor community that provides treatment
information, events, patient stories, Q&A,
new resources. |
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Hemophilia World |
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World Federation of Hemophilia (WFH)
www.wfh.org
Triannual. Articles on WFH activities and what hemophilia
organizations around the world are doing to improve care. |
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The Source Magazine |
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Plasma Protein Therapeutics Association
(PPTA)
www.pptaglobal.org
Quarterly. Information about the global plasma
protein therapeutics industry. Includes interviews
with key leaders; guest articles on safety and
innovation; stories about patients and plasma donors;
US and European legislative and regulatory topics. |
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One Voice |
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Save One Life
www.saveonelife.net
Quarterly. Newsletter of
Save One Life, a nonprofit
founded by Laurie
Kelley, which provides
individual child sponsorships
to children with
bleeding disorders in
impoverished countries. |
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TFY |
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Baxter BioScience
www.thereforyou.com
Quarterly. Inspirational
stories about families
with hemophilia; product
information from Baxter BioScience. |
