Newsletters

  • PEN

    Quarterly. The oldest US newsletter on hemophilia, produced and edited by a parent of a son with hemophilia. Provides medical, scientific, consumer, parenting articles and news. Investigates current topics in balanced, objective style. Empowers parents and patients to become educated consumers.

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  • PEN’s Insurance Pulse

    Annual. The only hemophilia newsletter completely dedicated to insurance issues from the parent/patient point of view. PEN’s Insurance Pulse will inspire you to protect access to therapy and healthcare.

    Sponsored by Shire:  www.shire.com

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