Our Books

  • Raising a Child With Hemophilia

    Raising a Child With Hemophilia: A Practical Guide for Parents

    Laureen A. Kelley, 2016
    LA Kelley Communications, Inc.
    www.kelleycom.com
    Free to families and patients

    Fifth edition of the world’s first parenting book on hemophilia written by a parent of a child with hemophilia. Practical, easy-to-understand information on medical treatment, genetic transmission, child development, consumer issues, school, sports. Includes stories and advice from experienced parents, compiled from interviews with more than 180 families.

    Sponsored by CSL Behring: www.cslbehring.com

    Add to cart
  • Empower Yourself About Hemophilia

    Laureen A. Kelley, 2017
    LA Kelley Communications, Inc.
    www.kelleycom.com
    Free to families and patients

    A hemophilia diagnosis can upset your beliefs, feelings, and life. This book offers simple, concrete ways to regain feelings of control through empowering ways of thinking and goal-setting. Before-and-after illustrations highlight the many situations you may face, and how to handle them confidently and effectively.

    Sponsored by Grifols USA: www.grifolsusa.com

    Add to cart
  • Managing Your Child’s Inhibitors

    Laureen A. Kelley and Paul Clement, 2009
    LA Kelley Communications, Inc.
    www.kelleycom.com
    Free to families and patients

    This book covers extensively, from the parents’ and patients’ point of view, topics such as pain management, surgery, family life, and treatment. Funded by an unrestricted grant from Novo Nordisk.

    Out of print.

  • A Guide to Living with von Willebrand Disease

    Renée Paper, R.N., with Laureen A. Kelley,
    2012, Third Edition
    LA Kelley Communications, Inc.
    www.kelleycom.com
    Free to families and patients

    The world’s first book on the world’s most commonly inherited bleeding disorder. Topics include learning to cope with VWD, inheritance, the medical system, treatment, women’s issues, health insurance. Complete resource guide and real-life stories.

    Out of Print. New edition coming soon!

    Sponsored by CSL Behring: www.cslbehring.com

  • Teach Your Child About Hemophilia

    Laureen A. Kelley, 2007
    LA Kelley Communications, Inc.
    www.kelleycom.com
    Free to families and patients

    In-depth exploration of the way children think and understand hemophilia as they mature. Examines children’s understanding of hemophilia concepts at different ages: cuts, healing, blood, severity levels, blood clotting, infusions, genetic transmission. Fascinating look at the way children on prophylaxis understand hemophilia. Prepares parents to appropriately answer children’s questions and encourage independence.

    Out of Print. New edition coming in 2019!

    Sponsored by CSL Behring: www.cslbehring.com

  • Raising a Child With Hemophilia in Latin America

    Laureen A. Kelley with Ana L. Narváez, 2006
    LA Kelley Communications, Inc.
    www.kelleycom.com

    English (PDF only), Spanish, Portuguese
    Free to families and patients

    First book about hemophilia in Latin America. Based on interviews with dozens of families and patients in five countries. Written for parents by a parent of a child with hemophilia. Topics include differences in hemophilia treatment, genetics, transmission, family dynamics, government policies, being a smart consumer, medical complications.

    Download English Version
    Download Spanish Version
    Download Portuguese Version

  • Success as a Hemophilia Leader

    Laureen A. Kelley, 2004
    LA Kelley Communications, Inc.
    www.kelleycom.com
    English, Spanish
    Free to qualified Hemophilia Leaders.

    World’s first guide to founding, managing and growing a grassroots hemophilia organization, or improving an existing one. Valuable advice on creating vision and mission, forming a board, fundraising, producing a newsletter, programming, establishing an office, working with a medical advisory board.

    Out of Print. New edition coming in 2018!