Project SHARE receives donations of antihemophilic factor concentrate from US patients, home healthcare corporations, hemophilia treatment centers, pharmacies and manufacturers.
We simultaneously receive urgent requests for factor from patients with bleeding disorders and the nonprofit organizations and hospitals in developing countries that serve them. Often, we are the only organization that can help a patient who needs factor.
Factor requests require a completed Factor Donation Request Form , with three signatures: the patient or caretaker, the patient’s attending physician, and a representative of their national bleeding disorders society.
Once the Factor Donation Request Form is received, we assess the request and determine whether we can make a donation. Our criteria for approval include the following:
- Medical urgency
- Our current factor inventory
- Whether a shipment can be made safely into the country
- Whether the patient, society or attending physician knows how to properly administer factor
A Confirmation of Shipment Receipt Form must be completed and returned to our office as soon as the shipment arrives at its destination. A Donated Factor Treatment Log must be completed and faxed to us once the donation is exhausted. A recipient’s failure to provide us with these forms may result in disqualification of future donations.
Every box is assigned a lot number as soon as it arrives at our office. Our inventory system tracks each box of donated factor. All factor is stored in a refrigerator in our secure office.
We do not ship expired factor. However, we can ship factor that is within weeks or days of expiration to known and trusted contacts in countries that will accept it.
Project SHARE ships factor directly from our supply of donated inventory. We also assist pharmaceutical companies in donating short-dated product. In these cases, we act as a “broker” between the manufacturer, the bleeding disorders society and the national government.
A weekly Project SHARE email report, detailing every box of factor that has been logged in and shipped out, is shared with interested parties and key organizations to avoid wastage and duplicating efforts.
