Additional Resources: Digital Games, Apps & Media
Movies & Videos
Let’s Talk Mental Health
Believe Ltd. 2020
Film destigmatizes conversations on mental health and rare disease; five members of the US bleeding disorder community open their hearts and lives to show how we can gain strength through struggle, and that perhaps we aren’t so different after all. Intended to spark conversation, increase awareness, decrease stigma. Website provides easy-to-use links, resources, and tools for connection, screening, receiving support. Produced in partnership with Mental Health Matters Too. Supported by Sanofi Genzyme.
iTunes, Amazon Prime
Documentary on the extraordinary story of mountaineer Chris Bombardier, who has hemophilia B, and his quest to conquer the Seven Summits. Explores Chris’s motivation for undertaking death-defying climbs, and follows his journey to Nepal to summit Mt. Everest to raise awareness of the disparity in hemophilia care in developing countries.
Web series dedicated to challenging ideas about living with a bleeding disorder, including overcoming barriers and misperceptions, and avoiding excuses for not accomplishing dreams. Hosted by Justin Willman.
iPhone users: download on App Store
Android users: download on Google
Helps patients keep track of bleeds and infusions; log infusions quickly; record bleeds precisely; generate reports to share with the treatment team; monitor factor supply.
HemMobile® Striiv® Wearable
Striiv Wearable paired with HemMobile offers activity tracking to monitor daily activity, heart rate, number of steps. Tracking intensity of activity means better discussions with the medical team about choosing activities, staying prepared, and managing hemophilia.
Virtual world designed for people with hemophilia, ages 8–16. Slay the Ender Dragon; craft components of an infusion kit; monitor the “factor bar” to prepare for adventure; share game strategy with friends and family to explain what it’s like to manage hemophilia.
HemoAction Online Game
World Federation of Hemophilia (WFH)
English, Spanish, French
Adventure game teaches children about hemophilia: how to prevent bleeds and manage hemophilia; the clotting process, types of bleeds, factor infusions, suitable physical activities.
My First Factor Song
Lyrics by Carri Nease
Sing along and teach through song! To the tune of “Alouette,” teach your toddler with hemophilia about bumps, bruises, “boo-boos,” factor.
Ongoing grassroots project collects music created by people with bleeding disorders. Provides forum for creativity, expression, sharing, learning, wellness. Musical experience required.