I just returned from India, there to check on our scholarship winners from Save One Life, my nonprofit. I was impressed to see such brave young men with hemophilia, most of whom do not often get treatment, attending college and trying to forge a future. They are succeeding. There’s so much joy in watching a young person fulfill their educational dreams!
It’s the same in the US, where so many with hemophilia are attempting to fulfill their dreams as well. Last week, I recognized
17 winners of the Soozie Courter Hemophilia
Scholarship, a Pfizer- sponsored tuition assistance
program. This week I am pleased to spotlight the stories of three recipients who are working
hard to achieve
their dreams while living with hemophilia.
Evan Poole never let hemophilia B
get in the way of his schoolwork or athletic pursuits. Evan’s condition forced him to challenge himself. When a
he always made sure to stay on top of his assignments. And he found athletic passions, such as golf, that he was able to pursue.
His perseverance has paid off.
Following in his father’s footsteps, Evan
a freshman studying engineering at Trine University. He was also
recently selected to take part in the National Hemophilia Foundation’s National
Institute (NYLI), based, in part, on
his significant involvement in the
hemophilia community. While Evan
school, including managing his condition
without his parents, he is now excited and up for the challenge!
Travis Albright, a University of Michigan senior
hemophilia A, first became
involved in the hemophilia
he was 10 years old and attended Camp Bold Eagle in
Muskegon, Michigan, run
the Hemophilia Foundation
Michigan (HFM). His commitment to the community steadily evolved year after year as he too
became involved with the NYLI, as well
as the HFM’s MYLIFE youth
leadership group. Through his leadership work, Travis quickly became a mentor to youth with
peers to educate themselves about ways to
successfully live with hemophilia.
experiences, Travis became an advocate for
people living with
Following his passion to educate
policymakers about hemophilia
and advocate for access to
treatment, Travis landed an
internship in Washington, D.C., where
assisted Rep. Gary
Peters and was invited to
speak at NHF’s annual
Washington Days event. He is now working
to complete a major in public policy.
O’Connor, a graduate
student with hemophilia
says he thinks of his life with
in two phases: before and
started swimming. Swimming became both a passion and
a way to help
get in tune with
body and better manage his condition. He
swam competitively for many years and also started coaching. Michael was approached by a mother who
had seen him speak about the importance
if he would
give lessons to her 10 year old
with hemophilia. He jumped at the opportunity, and was able to
combat the uncertainty of living with
a bleeding disorder by being
a role model for others.
Michael believes that if you
smart about yourself and your body, you
work hard, and you do what you love, it’s going to
work out in the end.
I second that from Michael. His mother, back in 1999, actually gave me the idea to start Save One Life, which now provides sponsorships to over 1,000 children with hemophilia in developing countries, and gives scholarships to many young men struggling to make it. It was hard work, but we love it, and we are reaping the rewards in watching young people live and thrive through their education.
We wish them much success in the future and thank them for sharing their stories. Visit
site’s Facebook page
for more information on the
Soozie Courter Hemophilia
Scholarship program and to see video clips about these recipients.