March 9, 2009

March is Hemophilia Awareness Month

March is a wonderful time for promoting and educating the public about hemophilia–it’s our official month! NHF just had Washington Days, which I, yet again, could not attend! I heard it was great; at least my friends all went and had fun without me.

While googling March and hemophilia, I came across this great PSA by Newt Gingrich and sponsored by Factor Foundation of America, the nonprofit founded by my friend Dave Madeiros, who passed away five years ago, Feb. 29. Dave was a visionary, light-years ahead of his time. How different things would be if he were with us today. View this–still relevant even now.

It’s a great month because our boy from Zimbabwe, Elton, had surgery on Friday in Chicago and is doing great! See photos of this child from an impoverished home, who has lost his father, 29-year-old brother to TB, and 25-year-old sister from meningitis just this past year, and who suffers from the devastating effects from untreated bleeds. He is doing great and is going to be fine. I am flying out to see him on the 25th, days before he is scheduled to go back home. There will be a lot of tears then, as everyone has fallen in love with this gracious and gentle young man.

And it’s a great month because a little 8-year-old orphan with hemophilia A in China, who is without home, parents and treatment, is having a lot of people inquire about adopting him! I have great faith he will find a home with a wonderful American hemophilia family. I am not allowed to show his photo, but he is adorable. Thin, wiry and mischievous, just as a boy should be.

Please share your activities for Hemophilia Month and please go to the blog about Elton and leave a comment! I am sure Elton would love to hear from you as an American!

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