Hemophilia Education Experts since 1990
In the Spotlight
Download PEN
Learn about new treatment, changes in insurance, parenting and more. PEN, written by parents and patients, for parents and patients—the oldest and most trusted newsletter on hemophilia in the US.
Leadership
Factor Chart
How does your factor brand compare? Download this comparative chart for information on all licensed factor brands in the US.
Project SHARE
Our humanitarian program that donates millions of dollars worth of factor to patients in developing countries. Since 2002 SHARE has donated $113 million IU to over 75 countries!
Shire’s pursuit of a zero-bleed future
The following is sponsored by Shire. Change is good, unless it affects your treatment. Here, we bring you interesting facts about Shire’s products…and reputation as
Embracing the Unique
Previously printed in PEN, May 2018 When children are diagnosed with hemophilia, they are each given an essential diagnostic label: for example, hemophilia A or
SAVE ONE LIFE
Help children with bleeding disorders in developing countries: Sponsor a child, support a summer camp, send a child through school!
