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Learn about new treatment, changes in insurance, parenting and more. PEN, written by parents and patients, for parents and patients—the oldest and most trusted newsletter on hemophilia in the US.


Success as a Hemophilia Leader
Effective leadership makes the difference between passively accepting an uncertain future with a bleeding disorder, and achieving outcomes like reliable medical treatment,  a unified community and advocating for change.

Factor Chart

How does your factor brand compare? Download this comparative chart for information on all licensed factor brands in the US.

Project SHARE

Our humanitarian program that donates millions of dollars worth of factor to patients in developing countries. Since 2002 SHARE has donated $113 million IU to over 75 countries!

IU of factor donated to developing countries this year!

Happy New Year!

We’re taking a one week break while we prepare for another new year, with new trips and new posts–wishing you all a wonderful holiday!

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