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Learn about new treatment, changes in insurance, parenting and more. PEN, written by parents and patients, for parents and patients—the oldest and most trusted newsletter on hemophilia in the US.


Effective leadership makes the difference between passively accepting an uncertain future with a bleeding disorder, and achieving outcomes like reliable medical treatment,  a unified community and advocating for change.

Factor Chart

How does your factor brand compare? Download this comparative chart for information on all licensed factor brands in the US.

Project SHARE

Our humanitarian program that donates millions of dollars worth of factor to patients in developing countries. Since 2002 SHARE has donated $113 million IU to over 75 countries!

IU of factor donated developing countries this year!

Embracing the Unique

Previously printed in PEN, May 2018 When children are diagnosed with hemophilia, they are each given an essential diagnostic label: for example, hemophilia A or

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