Download PEN
Learn about new treatment, changes in insurance, parenting and more. PEN, written by parents and patients, for parents and patients—the oldest and most trusted newsletter on hemophilia in the US.
Factor Chart
How does your factor brand compare? Download this comparative chart for information on all licensed factor brands in the US.
Paid Surveys
Would you like to participate in one of our many paid on-line surveys, phone interviews, or in-person advisory boards?
Hemophilia: A Woman’s Journey to Effective Treatment
by Milora Morley, MPH ©LA Kelley Communications, Inc. Reprinted with permission. Publication: Pulse 9.19 I never thought at age 27 that I would begin a journey as a woman diagnosed with mild hemophilia A. My brother, as well as several men in my family, have all been diagnosed with severe hemophilia A. I’m no stranger
Wild Child
Remember the 2014 movie “Wild”? About a woman, self-named “Cheryl Strayed” (as in strayed from the path), who decided to hike the Pacific Crest Trail from California to Oregon, a journey of 1,100 miles. Recently divorced, her life in emotional tatters, the trip is supposed to help her figure out who she is and where
SAVE ONE LIFE
Help children with bleeding disorders in developing countries: Sponsor a child, support a summer camp, send a child through school!
