Download PEN

Learn about new treatment, changes in insurance, parenting and more. PEN, written by parents and patients, for parents and patients—the oldest and most trusted newsletter on hemophilia in the US.

Factor Chart

How does your factor brand compare? Download this comparative chart for information on all licensed factor brands in the US.

Paid Surveys


Would you like to participate in one of our many paid on-line surveys, phone interviews, or in-person advisory boards?


Ambassador for bleeding disorders

Excerpted with permission from an on-line article by Jojo G. Silvestre World Hemophilia Day [April 17] is an international day of observance of which not many people seem to be aware. I am one person who may have a better understanding of bleeding disorders, a unique yet quietly widespread human malady only because my dear

Read More »

Hemophilia and Vampires!

It’s Halloween week! The holiday is a festive one, in which children and adults dress up in traditional costumes like ghosts, Frankenstein, pumpkins, devils and vampires, and nontraditional like pirates, doctors, celebrities and political figures. I recently watched a holiday classic, The Nightmare Before Christmas, and am reading the classic Dracula, by Bram Stoker—a masterpiece

Read More »

Follow Us!



Help children with bleeding disorders in developing countries: Sponsor a child, support a summer camp, send a child through school!