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Learn about new treatment, changes in insurance, parenting and more. PEN, written by parents and patients, for parents and patients—the oldest and most trusted newsletter on hemophilia in the US.


Success as a Hemophilia Leader
Effective leadership makes the difference between passively accepting an uncertain future with a bleeding disorder, and achieving outcomes like reliable medical treatment,  a unified community and advocating for change.

Factor Chart

How does your factor brand compare? Download this comparative chart for information on all licensed factor brands in the US.

Project SHARE

Project SHARE is now a program of Save One Life!

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Total IUs Received 2018

The Day the Music Cried

Today is the 60th anniversary of what was dubbed “The Day the Music Died,” by singer Don McClean in the song “American Pie.” The day

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Hemophilia Notes

Music is figuring prominently in the movies lately: A Star is Born, the third remake with Lady GaGa and Bradley Cooper, is a musically and

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