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Learn about new treatment, changes in insurance, parenting and more. PEN, written by parents and patients, for parents and patients—the oldest and most trusted newsletter on hemophilia in the US.
Factor Chart
How does your factor brand compare? Download this comparative chart for information on all licensed factor brands in the US.
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Would you like to participate in one of our many paid on-line surveys, phone interviews, or in-person advisory boards?
The Lost Crown
Two months into the pandemic, and I have read 18 books so far this year. And… I’ve watched a ton of movies on iTunes! But I love reading. If you need to wean your teens away from the TV and video games, look into some interesting books for young readers. Here’s a historical novel, labeled
Happy Hemophilia Mother’s Day!
When two mothers meet, whether they know one another or not, there is an instant bond and understanding. Thoughts, feelings and words flow easily, especially when it comes to the subject of children and childbirth, in other words, being a mother. For example, a man I worked with for two years never shared much personally.
SAVE ONE LIFE
Help children with bleeding disorders in developing countries: Sponsor a child, support a summer camp, send a child through school!
