Learn about new treatment, changes in insurance, parenting and more. PEN, written by parents and patients, for parents and patients—the oldest and most trusted newsletter on hemophilia in the US.
How does your factor brand compare? Download this comparative chart for information on all licensed factor brands in the US.
Would you like to participate in one of our many paid on-line surveys, phone interviews, or in-person advisory boards?
We are excited to introduce to you two books from our editor of 25 years, Sara Evangelos. Sara has written two young adult books under the pen name, Sara Webley. Zo in the Roosting Tree tells the story of an 11-year-old girl who wakes up one morning… as a crow! She doesn’t know how it happened,
I’m sitting at my desk, waiting for a snow storm to roll in, and thinking about how we are ending this amazing year. There was the usual travel to attend NHF’s and HFA’s annual meeting, and I also attended the Bombardier Blood movie showings in California (at FFF Enterprises and Genentech), Michigan, North Carolina and
SAVE ONE LIFE
Help children with bleeding disorders in developing countries: Sponsor a child, support a summer camp, send a child through school!