1987 | Laurie Kelley’s son with hemophilia born |
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1991 | Raising a Child with Hemophilia by Laureen A. Kelley |
| Parent Exchange Newsletter (PEN) launched |
| Must You Always be a Boy? by Laureen A. Kelley |
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1992 | Alexis, the Prince Who Had Hemophilia by Laureen A. Kelley |
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1993 | Raising a Child with Hemophilia Ed 2 by Laureen A. Kelley |
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1994 | Don’t Be Victimized by Hemophilia by Laureen A. Kelley |
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1995 | Joshua, Knight of the Red Snake by Laureen A. Kelley |
| They Will Probably Ask You: “What is Hemophilia?” by Laureen A. Kelley |
| Tell Them the Facts! About Hemophilia by Laureen A. Kelley |
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1995 | Hemophilia: It’s Logical! by Laureen A. Kelley |
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1996 | “My Blood Doesn’t Have Muscles!” (now Teach Your Child About Hemophilia) by Laureen A. Kelley |
| Leadership Institute for Global Hemophilia Training (L.I.G.H.T.) launched |
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1997 | Hemophilia Leader newsletter launched |
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1998 | First direct-to-consumer pharmaceutical messaging program established |
| Laurie’s first trip overseas for L.I.G.H.T.: Dominican Republic, Puerto Rico |
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1999 | Raising a Child with Hemophilia Ed 3 by Laureen A. Kelley |
| First visit to Pakistan by Laurie |
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2001 | Save One Life, Inc. founded by Laureen A. Kelley |
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2001 | Factor Fun by Diane Horbacz |
| “Reach the Summit” leadership training conducted in India |
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2002 | A Guide to Living with von Willebrand Disease by Renée Paper, RN, with Laureen A. Kelley |
| Project SHARE founded |
| PEN retitled Parent Empowerment Newsletter |
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2004 | Empower Yourself About Hemophilia by Laureen A. Kelley |
| Success as Hemophilia Leader by Laureen A. Kelley |
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2005 | L.I.G.HT. and Hemophilia Leader newsletter end |
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2006 | A Guide to Living with von Willebrand Disease Ed. 2 by Renée Paper, RN, with Laureen A. Kelley |
| Legacy: The Hemophilia of Yesterday by Matthew Dean Barkdull |
| Raising a Child with Hemophilia in Latin America by Laureen A. Kelley with Ana Narváez |
| HemaBlogTM launched, first dedicated blog to hemophilia |
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2007 | Raising a Child with Hemophilia ed 4 released |
| Teach Your Child About Hemophilia Ed 2. by Laureen A. Kelley |
| A Consumer’s Guide to Bleeding Disorder Products by Laureen A. Kelley with Paul Clement |
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2008 | Success as Hemophilia Leader Ed. 2 by Laureen A. Kelley |
| “Pulse on the Road” Insurance program launched in Washington D.C. |
| Laurie receives “Breakthrough Spirit” award by Cancer Children’s & Blood Foundation, New York City |
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2009 | Just a Boy by Ziva Mann |
| PEN’s Insurance Pulse Newsletter launched |
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2010 | Managing Your Child’s Inhibitor: A Practical Guide for Parents by Laureen A. Kelley with Paul Clement |
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2011 | My First Factor Song by Carri Nease |
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2012 | A Guide to Living with von Willebrand Disease Ed. 3 by Renée Paper, RN, with Laureen A. Kelley |
| My First Factor series by Shannon Brush |
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2016 | Raising a Child with Hemophilia ed 5, 25th anniversary, by Laureen A. Kelley |
| PEN celebrates 25th year of publication |
| “Pulse on the Road” Insurance program ends |
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2017 | Empower Yourself About Hemophilia ed. 2 by Laureen A. Kelley |
| Project SHARE donates a record $45 million worth of factor overseas |
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2018 | Success as a Hemophilia Leader Ed. 3 by Laureen A. Kelley |