Our Books
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Raising a Child With Hemophilia: A Practical Guide for Parents (5th ed.)
Laureen A. Kelley, 2016
LA Kelley Communications, Inc. 2016
Free to hemophilia families
kelleycom.com
amazon.comWorld’s first parenting book on hemophilia written by a parent of a child with hemophilia. Practical, easy-to-understand info on medical treatment, genetic transmission, child development, consumer issues, school, sports. Includes advice from experienced parents, compiled from interviews with more than 180 families. Sponsored by CSL Behring.
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Teach Your Child About Hemophilia
Laureen A. Kelley, 2020
LA Kelley Communications, Inc.
$5.99
www.kelleycom.com
paperback or e-bookExplains what your child with hemophilia may be thinking at different ages when experiencing a bleed, receiving an infusion, visiting the hospital. Interviews with dozens of children and teens examine their understanding of cuts, healing, blood, factor, severity levels, blood clotting, infusions, genetic transmission, and a cure. Helps prepare you to educate your child about hemophilia in a positive, effective, age-appropriate way.
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Empower Yourself About Hemophilia
Laureen A. Kelley, 2017
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patientsA hemophilia diagnosis can upset your beliefs, feelings, and life. This book offers simple, concrete ways to regain feelings of control through empowering ways of thinking and goal-setting. Before-and-after illustrations highlight the many situations you may face, and how to handle them confidently and effectively.
Available in paperback or eBook.
Sponsored by Grifols USA: www.grifolsusa.com
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Success as a Hemophilia Leader
Laureen A. Kelley
LA Kelley Communications, Inc. 2018
$5.99
Free to qualified Hemophilia Leaders
kelleycom.com
paperback or e-bookWorld’s first guide to founding, managing, and growing a grassroots hemophilia organization or improving an existing one. Advice on creating vision and mission, forming a board, fundraising, producing a newsletter, programming, establishing an office, working with a medical advisory board.
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Raising a Child With Hemophilia in Latin America
Laureen A. Kelley with Ana L. Narváez, 2006
LA Kelley Communications, Inc.
www.kelleycom.com
English, Spanish, Portuguese – (PDF only)
Free to families and patientsFirst book about hemophilia in Latin America. Based on interviews with dozens of families and patients in five countries. Written for parents by a parent of a child with hemophilia. Topics include differences in hemophilia treatment, genetics, transmission, family dynamics, government policies, being a smart consumer, medical complications.
Available in English, Spanish, and Portuguese PDFs.
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Managing Your Child’s Inhibitor: A Practical Guide for Parents
Laureen A. Kelley with Paul Clement
LA Kelley Communications, Inc. 2010
Free to inhibitor families
kelleycom.comWorld’s first book on inhibitors. From parents’ and patients’ points of view, extensively covers topics including pain management, surgery, family life, treatment. Sponsored by an unrestricted grant from Novo Nordisk Inc.
While this book is currently out of print, it is available for free download.
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A Guide to Living with von Willebrand Disease
Renée Paper, R.N., with Laureen A. Kelley,
2012, Third Edition
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patientsThe world’s first book on the world’s most commonly inherited bleeding disorder. Topics include learning to cope with VWD, inheritance, the medical system, treatment, women’s issues, health insurance. Complete resource guide and real-life stories.
Out of Print. New edition coming soon!
Sponsored by CSL Behring: www.cslbehring.com
