Our Books

  • Raising a Child With Hemophilia

    Raising a Child With Hemophilia: A Practical Guide for Parents (5th ed.)

    Laureen A. Kelley, 2016
    LA Kelley Communications, Inc.
    www.kelleycom.com
    Free to families and patients

    Fifth edition of the world’s first parenting book on hemophilia written by a parent of a child with hemophilia. Practical, easy-to-understand info on medical treatment, genetic transmission, child development, consumer issues, school, sports. Includes advice from experienced parents, compiled from interviews with more than 180 families. Sponsored by www.cslbehring.com.

    Available in paperback or eBook. Please click on “select option” below and then choose which book type you would like on the next page.  You can then add it to your cart.

     

    Select options
  • Empower Yourself About Hemophilia

    Laureen A. Kelley, 2017
    LA Kelley Communications, Inc.
    www.kelleycom.com
    Free to families and patients

    A hemophilia diagnosis can upset your beliefs, feelings, and life. This book offers simple, concrete ways to regain feelings of control through empowering ways of thinking and goal-setting. Before-and-after illustrations highlight the many situations you may face, and how to handle them confidently and effectively.

    Available in paperback or eBook. Please click on “select option” below and then choose which book type you would like on the next page.  You can then add it to your cart.

    Sponsored by Grifols USA: www.grifolsusa.com

    Select options
  • Managing Your Child’s Inhibitor: A Practical Guide for Parents

    Laureen A. Kelley with Paul Clement
    LA Kelley Communications, Inc. 2010
    Free to inhibitor families
    kelleycom.com

    World’s first book on inhibitors. From parents’ and patients’ points of view, extensively covers topics including pain management, surgery, family life, treatment. Sponsored by an unrestricted grant from Novo Nordisk Inc.  

    Out of print.

  • A Guide to Living with von Willebrand Disease

    Renée Paper, R.N., with Laureen A. Kelley,
    2012, Third Edition
    LA Kelley Communications, Inc.
    www.kelleycom.com
    Free to families and patients

    The world’s first book on the world’s most commonly inherited bleeding disorder. Topics include learning to cope with VWD, inheritance, the medical system, treatment, women’s issues, health insurance. Complete resource guide and real-life stories.

    Out of Print. New edition coming soon!

    Sponsored by CSL Behring: www.cslbehring.com

  • Teach Your Child About Hemophilia

    Laureen A. Kelley, 2007
    LA Kelley Communications, Inc.
    www.kelleycom.com
    Free to families and patients

    In-depth exploration of the way children think and understand hemophilia as they mature. Examines children’s understanding of hemophilia concepts at different ages: cuts, healing, blood, severity levels, blood clotting, infusions, genetic transmission. Fascinating look at the way children on prophylaxis understand hemophilia. Prepares parents to appropriately answer children’s questions and encourage independence.

    Out of Print. New edition coming in 2019!

    Sponsored by CSL Behring: www.cslbehring.com

  • Raising a Child With Hemophilia in Latin America

    Laureen A. Kelley with Ana L. Narváez, 2006
    LA Kelley Communications, Inc.
    www.kelleycom.com
    English, Spanish, Portuguese – (PDF only)
    Free to families and patients

    First book about hemophilia in Latin America. Based on interviews with dozens of families and patients in five countries. Written for parents by a parent of a child with hemophilia. Topics include differences in hemophilia treatment, genetics, transmission, family dynamics, government policies, being a smart consumer, medical complications.

    Available in English, Spanish, and Portuguese PDFs. Please select the option below and add it to your cart.

    Select options
  • Success as a Hemophilia Leader

    Laureen A. Kelley
    LA Kelley Communications, Inc. 2018
    $5.99
    Free to qualified Hemophilia Leaders
    kelleycom.com

    World’s first guide to founding, managing, and growing a grassroots hemophilia organization, or improving an existing one. Advice on creating vision and mission, forming a board,fundraising, producing a newsletter, programming, establishing an office, working with a medical advisory board.

    Available in paperback or eBook. Please click on “select option” below and then choose which book type you would like on the next page.  You can then add it to your cart.

    Select options