Our Books
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Raising a Child With Hemophilia: A Practical Guide for Parents
Add to cartLaureen A. Kelley, 2016
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patientsFifth edition of the world’s first parenting book on hemophilia written by a parent of a child with hemophilia. Practical, easy-to-understand info on medical treatment, genetic transmission, child development, consumer issues, school, sports. Includes advice from experienced parents, compiled from interviews with more than 180 families.
Sponsored by CSL Behring: www.cslbehring.com
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Empower Yourself About Hemophilia
Add to cartLaureen A. Kelley, 2017
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patientsA hemophilia diagnosis can upset your beliefs, feelings, and life. This book offers simple, concrete ways to regain feelings of control through empowering ways of thinking and goal-setting. Before-and-after illustrations highlight the many situations you may face, and how to handle them confidently and effectively.
Sponsored by Grifols USA: www.grifolsusa.com
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Managing Your Child’s Inhibitor: A Practical Guide for Parents
Laureen A. Kelley with Paul Clement
LA Kelley Communications, Inc. 2010
Free to inhibitor families
kelleycom.comWorld’s first book on inhibitors. From parents’ and patients’ points of view, extensively covers topics including pain management, surgery, family life, treatment. Sponsored by an unrestricted grant from Novo Nordisk Inc.
Out of print.
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A Guide to Living with von Willebrand Disease
Renée Paper, R.N., with Laureen A. Kelley,
2012, Third Edition
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patientsThe world’s first book on the world’s most commonly inherited bleeding disorder. Topics include learning to cope with VWD, inheritance, the medical system, treatment, women’s issues, health insurance. Complete resource guide and real-life stories.
Out of Print. New edition coming soon!
Sponsored by CSL Behring: www.cslbehring.com
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Teach Your Child About Hemophilia
Laureen A. Kelley, 2007
LA Kelley Communications, Inc.
www.kelleycom.com
Free to families and patientsIn-depth exploration of the way children think and understand hemophilia as they mature. Examines children’s understanding of hemophilia concepts at different ages: cuts, healing, blood, severity levels, blood clotting, infusions, genetic transmission. Fascinating look at the way children on prophylaxis understand hemophilia. Prepares parents to appropriately answer children’s questions and encourage independence.
Out of Print. New edition coming in 2019!
Sponsored by CSL Behring: www.cslbehring.com
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Raising a Child With Hemophilia in Latin America
Laureen A. Kelley with Ana L. Narváez, 2006
LA Kelley Communications, Inc.
www.kelleycom.com
English (PDF only), Spanish, Portuguese
Free to families and patientsFirst book about hemophilia in Latin America. Based on interviews with dozens of families and patients in five countries. Written for parents by a parent of a child with hemophilia. Topics include differences in hemophilia treatment, genetics, transmission, family dynamics, government policies, being a smart consumer, medical complications.
Download English Version
Download Spanish Version
Download Portuguese Version -
Success as a Hemophilia Leader
Laureen A. Kelley
LA Kelley Communications, Inc. 2018
Free to qualified Hemophilia Leaders
kelleycom.comWorld’s first guide to founding, managing, and growing a grassroots hemophilia organization, or improving an existing one. Advice on creating vision and mission, forming a board,fundraising, producing a newsletter, programming, establishing an office, working with a medical advisory board.
Sponsored by Grifols.