Raising a Child With Hemophilia in Latin America
Laureen A. Kelley with Ana L. Narváez, 2006
LA Kelley Communications, Inc.
English (PDF only), Spanish, Portuguese
Free to families and patients
First book about hemophilia in Latin America. Based on interviews with dozens of families and patients in five countries. Written for parents by a parent of a child with hemophilia. Topics include differences in hemophilia treatment, genetics, transmission, family dynamics, government policies, being a smart consumer, medical complications.