Raising a Child With Hemophilia in Latin America
Laureen A. Kelley with Ana L. Narváez, 2006
LA Kelley Communications, Inc.
English, Spanish, Portuguese – (PDF only)
Free to families and patients
First book about hemophilia in Latin America. Based on interviews with dozens of families and patients in five countries. Written for parents by a parent of a child with hemophilia. Topics include differences in hemophilia treatment, genetics, transmission, family dynamics, government policies, being a smart consumer, medical complications.
Available in English, Spanish, and Portuguese PDFs.