Raising a Child With Hemophilia: A Practical Guide for Parents (5th ed.)
World’s first parenting book on hemophilia written by a parent of a child with hemophilia. Practical, easy-to-understand info on medical treatment, genetic transmission, child development, consumer issues, school, sports. Includes advice from experienced parents, compiled from interviews with more than 180 families. Sponsored by CSL Behring.
While this book is currently on back order, it is available to download for free.