January 2026

Good News from CSL Behring

Laurie Kelley January 25, 2026

Here’s some good nes to kick off the new year; just in from CSL Behring:

“We are pleased to announce an important update to the IDELVION Connect Copay Program.* In recognition of the ongoing needs of the patient community and our commitment to providing meaningful support, we are increasing the maximum eligible out-of-pocket copay assistance from $12,000 to $20,000 per patient. To enroll, patients and Specialty Pharmacies are encouraged to contact IDELVION Connect at 1-800-676-4266.

“What is Changing

  • Effective, January 1, 2026, CSL has increased the out-of-pocket IDELVION copay coverage up to $20,000 per year for each eligible patient.

“What is Not Changing

  • IDELVION Copay Support Program helps eligible patients with commercial insurance by assisting with out-of-pocket expenses for IDELVION. Most patients with commercial insurance pay $0 out-of-pocket.
  • Both patients and Specialty Pharmacies can contact IDELVION Connect at 1-800-676-4266 to inquire and/or process a copay coverage request.
  • If a claim is disputed for any reason, the Specialty Pharmacy is responsible for contacting IDELVION Connect at 1-800-676-4266

“If you have questions, feel free to contact IDELVION Connect at 1-800-676-4266.”

Making Maximum Impact!

Laurie Kelley January 11, 2026

I’ve been donating factor to developing countries since 1996 informally. Then in 2002, I founded Project SHARE to make it a formal part of my company, with a director and staff. Then, in 2019, I gifted that program to Save One Life, the nonprofit I founded, and started my own program—Maximum Impact. The idea is this this: simplified donating. No overhead, no employees, no fundraising. I extended my factor donations to include funding for home repairs, medical testing, school fees, surgeries and prosthetics. It gives maximum impact. Boom— me to them.

It might be impossible to know how many lives we have saved or improved over the decades, but I do have some data. This year was my best year ever for donating factor. Ready?

7,940,699 IU of factor VIII, factor IX, FEIBA and VWF donated overseas, worth at least $16 million. And let’s include the 4101 mg Hemlibra and 756 mg bypassing agents for a grand total of over $18.5 million.

It’s donated free of charge. We pay for shipping and any customs fees and wire fees.

The lucky recipients live in many countries. This year these include:

Bangladesh, Barbados, Bolivia, Cambodia, Dominican Republic, Egypt, India, Madagascar, Mexico, Pakistan, Philippines, St. Lucia, St. Vincent and the Grenadines,  United Arab Emirates, Vietnam, and Zimbabwe. Visit here to download our successes-to-date chart!

Our factor is donated to us from individuals, HTCs, hemophilia nonprofits, and specialty pharmacies. Often people have switched factor brands or have had unhappy experiences with their prescribed drug.

Our recipients are typically people I know and trust from decades of work in the international bleeding disorder community. They work for their national or local communities. In other words, they are well vetted.

While I try to help as many as I can, there are limits. We are limited by our donations, and by access to countries. Some countries have too many obstacles that put the donated factor at risk of confiscation or delay. I’m sorry for those patients who are unable to receive our donations.

I’m deeply grateful to everyone who has donated their unwanted and unneeded factor. And so are our recipient patients!

We look forward in 2026 to providing more factor, and funds for school fees, medical costs, and prosthetics for those who live in countries where access to these are limited or unavailable.

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