Blog

Honoring a Special Mother

Mother’s Day…  a special day for mothers of children with chronic disorders, like hemophilia. The sacrifices and suffering they endure creates women of strength and compassion, and they deserve to be celebrated. A perfect book to read this week is Journey, by Robert K. and Suzanne Massie, first published in 1973. The intimate story of

Read More »

Mothers Focus on Mental Health: Meet BD SUMHAC

May is the month of Mother’s Day, and I want to highlight this week and next two very special mothers and their cause: mental health in those with bleeding disorders. Those of us who had sons born in the late 1980s found that the community was focused intensely on the devastating impact of HIV. Children

Read More »

Hemophilia and Poetry

To finish up National Poetry Month, let’s consider two more poets with hemophilia. by Richard J. Atwood To me, poetry specializes in the efficient expression of emotions and descriptions. It condenses writing into a purer form. You might compare poetry to the fractionation and purification of blood plasma to get the purest factor proteins, but

Read More »

The Hemophiliac’s Motorcycle

April is National Poetry Month, and it’s time to recognize one of the bleeding disorder community’s top poets: Tom Andrews. Tom passed away in 2001, at age 40, of complications of a blood disease, but also had hemophilia. His poetry reflected the pain he often felt due to his disorder—he won several awards for his

Read More »

World Hemophilia Day

April 17 is the birth day of Frank Schnabel, a California businessman who, over 60 years ago, founded the World Federation of Hemophilia (WFH). All across the globe on April 17, the hemophilia community celebrates unity, that we are one family united by a protein deficiency that causes prolonged bleeding and suffering. It’s called “World

Read More »