The Royal Disease and Russia
Both the Royals and the Russians have been making the news this past year, not much of it good. For the Royals, it’s mostly just the Markles (on their “Privacy Tour”). For Russia…. well, let’s not go there. While Russia is making a ruinous name for itself these past two years, it’s famous for its
A Pandora’s Box of Myths
It’s Bleeding Disorder Awareness Month! True: Designated in 1986 as Hemphilia Awareness Month this is the month to educate the public—and ourselves—about bleeding disorders. I usually start with what hemophilia is not. Perhaps because hemophilia is so rare, it has generated many myths. Myths are stories, sometimes created by people in an attempt to make
Help is Here!
Hemophilia—all bleeding disorders really—requires help, and not just from therapies. Due to healthcare changes, patients are required often to pay higher out of pocket costs. And sometimes, it’s just life: single parenting, limited job opportunities, higher education bills, gas, care and health insurance. We could all use help. Hemophilia Federation has a great listing of
Leadership Redefined
First published in PEN February 2020 I’m here in Antarctica, and have visited the grave site of one of the most famous leaders in history: Ernest Shackleton. The famed polar explorer was renowned for surviving a horrendous situation, and leading the men directly under his watch to safety. It’s such a compelling story, that I
Mental Health Post Coronavirus
Debbie de la Riva © LA Kelley Communications, Inc. www.kelleycom.com This article originally appeared in PEN August 2020. Reprinted here with edits. The collective pursuit to control the spread of coronavirus resulted in an enormous challenge for the bleeding disorder community. The economic fallout of sheltering in place has affected our need for a steady
