Hemophilia in Romania

From Disability to Doctor: Cristian of Romania

My name is Cristian Dragusin and I am a person with severe hemophilia from Romania. I am 25 years old and have recently graduated medical school. Things are looking up for my life but there were moments in the past when I could have never seen myself achieve everything I did. It was only with the support of the people around me that I was able to get this far and look forward to the future, in spite of my condition.

My early childhood was not as affected by my disorder as the later years, with only some occasional bleeding episodes. As I started school, however, the bleedings became more frequent and debilitating, the right elbow being the first target joint. Access to treatment was limited because I developed inhibitors, and there was no prophylaxis to speak of. The pain would keep me up at night and treatment often only consisted of cold compresses.

When I was 12, I had a severe episode that involved both my knees. I was in and out of the hospital for several months and there was long lasting damage. Around that time, my parents divorced and my mother was left alone to take care of me with help from my grandparents. The frequent and long periods of hospitalization were difficult to say the least. It was also at that age when I went to my first hemophilia camp, where I got to meet and befriend many other children like me. I was using a wheelchair when camp first started and, by the time I returned home, thanks to the treatment I received, I could walk with crutches. Every year afterwards I would look forward to Camp Ray of Hope, the place where I could move and have fun without worries.

The second turning point was in high school, when I had another severe event involving my knees. There were times when not even the hospital had any treatment available. Both of my knees were now permanently affected and I couldn’t walk without crutches anymore. This was the most hopeless time of my life.

As high school was nearing its end, I had to choose what I was going to do next. After long considerations and changes of heart, medical school seemed to be the path for me. Working in this field was something that just resonated with me after all the time spent in the hospital. And by the time high school ended, I finally gained access to prophylaxis and the number of bleeds decreased drastically: better later than never.

University came with its own set of problems. Courses and rotations were often in different parts of the city and there were many costs associated with school and living in a different place on my own. It was thanks to my family and the support offered by Save One Life that I managed to finish it without a hitch. The sponsorships and scholarships I received from Save One Life over the years were especially of great help in easing the financial burden.

Looking back, the journey to this point in time wasn’t the happiest so I am extraordinarily grateful to the people that were by my side, and especially to my mother, who has done everything in her power to make my life easier. Now I have proper access to treatment and will start working in a couple of months, a scenario which was merely a dream years ago, and I intend to live this dream to the fullest. 

What on earth are you doing for heaven’s sake?

Remember this slogan? It was found on bumper stickers in the 70s, from what I recall. Maybe this was my first attempt at editing: were they trying to say, “What on earth are you doing, for heaven’s sake?” Like, “Are you crazy or something?” Or maybe, “What on earth are you doing for Heaven’s sake?” as in, what’s your purpose here on earth before you go to Nirvana, Heaven or get reincarnated as an insect?

I thought of this bumper sticker when I read the essay submitted to me by friend and colleague Adriana Hendersen. She is a one-woman agent for change in Romania, and has changed the lives of dozens of boys forever. This is excerpted from the November issue of my newsletter PEN. In case you missed it, read on…

Why Am I Here?

“Why are we here?” is a philosophical question concerning the purpose of life.

“I have asked myself many times why I am here, but with the emphasis on here, in the US.

“In 1970, I seemed destined for a different life, in Romania. My father was sentenced to spend his life in a communist prison for criticizing the government’s decision to deny the family the right to emigrate; and we, his children, were supposed to be sent to reeducation school. But we didn’t know that our situation had been receiving international attention. Following pressure from the United Nations and various churches, the Romanian government asked us to leave Romania immediately. It was a magnificent, magical, miraculous exit. We were the first family in Romania to leave legally, not only with a passport for emigrants, but also carrying an American green card.

“As a young girl I never once looked back, or even thought about what I had left behind. I thought I would forget Romania, and hoped I would forgive. I pursued everything the US offered: freedom and opportunity. I had a wonderful family, a big house in the suburb, cars, trips around the world, a closet full of designer clothes. Most important, my family was healthy. Yet it felt like something was missing.

“When the Iron Curtain fell in 1989 and images of the harsh realities in Romania besieged the world, I could not ignore my country and people anymore. The question “why am I here” started to nag me.

“As a child, all I could think of was survival. Now, with my newfound freedom came a desire to succeed. When success wasn’t enough, I started to look for significance. I wanted to give back, to make a difference, to acknowledge the blessings that were bestowed on me and possibly see if there was a reason for my being here.

“I was at a loss about what I could do, and for years I looked for some cause I could identify with. Then I met a woman who was looking for medicine to help a boy with hemophilia in Romania; he needed corrective foot surgery to walk. I barely knew anything about hemophilia, and the little I knew was mostly inaccurate. After a quick and shocking lesson on hemophilia, I began a quest to find the miracle medicine. It wasn’t easy, and the more I searched, the more I lost hope. I made hundreds of phone calls, all over the world, trying to source any kind of donation. It was a test of endurance and tenacity. I had one phone call left to make, the call to Project SHARE. They immediately shipped the factor, and the rest is history. That was more than 10 years ago.

“Since then, I know why I am here. The boy had surgery and his wish was granted: he is now walking. That’s when S.T.A.R. (Start Thinking About Romanian) Children Relief was born. S.T.A.R. is a multipurpose organization with an emphasis on healthcare and a focus on blood disorders. Through S.T.A.R.’s efforts and donated factor concentrate, many Romanian boys and adults with hemophilia have had their lives improved or spared. On World Hemophilia Day, April 17, 2004, S.T.A.R. organized the first-ever hemophilia symposium in Romania. And S.T.A.R. organizes and hosts Camp Ray of Hope, in its sixth consecutive year this past summer, the only camp for children with hemophilia in Romania.

“S.T.A.R. is also Save One Life’s partner for Romania. We have 59 children and adults with hemophilia sponsored through Save One Life. I know most of the beneficiaries personally, and have visited them at home or seen them at camp where they play with carefree enjoyment. I get to see them smile and hear them laugh. It feels awesome to be so intimately and personally involved.

“I never thought I would be involved in charity or volunteer work. I don’t have the personality. I am shy, withdrawn, introverted, not the type that would organize international conferences and fundraise for summer camps. It’s said that we, in the nonprofit world, change other people’s lives. That’s true, but in the process, our lives change too. We have a purpose, our life has meaning, we do things we thought we could never do. That’s a terrific feeling! We give a little, but we get a lot back.

“I know—Romania is close to my heart, and I have a vested interest in helping my people. But to anyone who, like me, is searching and wondering if there is something more than just the fleeting pleasures in life: if you want to make a difference or improve a life, while you improve your own, consider sponsoring a child. Look at the Save One Life website, where many with hemophilia are waiting to be sponsored. Pick a country, pick a child. Put a sparkle in those eyes that look so hauntingly and sadly at the lens. Bring a smile and a chance for a better life. It’s a small gesture that will bring priceless rewards.
I know why I am here. Do you?”

Maybe the bumper sticker needs to simply say: “I know why I am here. Do you?”

Adriana Henderson is founder and president of S.T.A.R. Children Relief, a nonprofit dedicated to helping Romanian children in need. She was born in Romania and immigrated to the US, where she has lived for the past 40 years. She is a graduate of UCLA, and lives in North Carolina with her husband Tom, who often helps with her charitable work. They have two daughters. Visit www.starchildrenrelief.org

Biking to Istanbul for Hemophilia


Kiss Laszlo lives in Romania. He’s the father of Daniel, who has severe hemophilia A. I’ve been to Romania twice– a beautiful, pastoral country, with rolling mountains and quaint villages. I’ve visited with the hemophilia patients and doctors, and helped out with hemophilia camp in 2006 on the Black Sea. We donate quite a bit of factor to Romania. Only recently has the government begin to buy substantial amounts of factor for its people. A lot of patients, despite the excellent medical care from its wonderful doctors, are crippled. You just have to have factor to keep joints in good shape.

Kiss knows this and knows we need to raise awareness of hemophilia needs. He came up with a brilliant idea– to bike all the way from Romania to Istanbul, where the World Federation of Hemophilia starts its biannual Congress next Sunday. “I decided to do this trip not only for my son, but for the whole hemophilia community. I shall do 1089km in 14 days,” he pledges on his blog, which you can read at

http://kkisslaci.blogspot.com/

Kiss is blogging along the whole journey! You can read about his exploits right now. “During my trip I shall stop in each important town, no matter if it’s Romanian, Bulgarian or Turkish. There I shall meet the local hemophilia associations and the local media too. Once arrived there in the name of our association I want to get in contact with other similar organizations to build common actions and develop a partner relationship over the medium to long term.”

What a wonderful idea and what devotion! I cannot wait to meet him. I will be off to Istanbul myself on Friday, and will also be blogging about my trip. Please tune in and see what is happening in the world of hemophilia.

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