Leaders

Who are the Future Hemophilia Leaders?

Laurie Kelley October 22, 2012

mentor (n.) Look up mentor at Dictionary.com

We often hear the word mentor, but what does it mean? Mentor hails from Greek writing. Mentor was a friend of Odysseus and adviser of Telemachus (son of Odysseus and Penelope) in Homer’s Odyssey. It may also derive from the Greek word  mentos (intent, purpose, spirit, passion) or from the Latin  monitor (one who admonishes), or from the root men (to think).

One of the prime responsibilities of any leader is to mentor and raise up other leaders. It does no good to create an institution, organization, or program and not share the leadership knowledge and managerial information required to run it and carry forward the vision. Leadership is an art, and young people can learn from the current masters how to use the tools and right perspective to create their own masterpieces. Never is this needed more in hemophilia. Our current leaders at NHF are working actively to recruit and teach up and coming leaders.

And industry is too! Here is a unique and brilliant opportunity to particiapte in leadership training. Check it out and apply today! Become a leader, with an aim to helping the future hemophilia community, here in the US and globally!




Program: Bayer Hemophilia Leadership Development Program (BHLDP) Internship


Requirements to Apply: Students enrolled full-time in college who are touched by hemophilia and have a strong interest in and commitment to becoming a future leader in the hemophilia community.


Program Details: Interns will travel to Bayer’s U.S. Headquarters where they will participate in activities that aim to help them grow personally and professionally. Selected interns will:

·       work directly with leaders at Bayer as they participate in formal training on communication skills, effective problem solving, leadership and compliance

·       work with hemophilia organizations in the area to learn about the work done to support the hemophilia community and how business professionals can support these efforts

·       meet with healthcare public policy professionals in Washington D.C. where interns will see first-hand how effective advocacy relations impacts legislative decisions.

This is an this eight-week, paid internship (June – August 2013). For more information and to download an application, visit www.livingbeyondhemophilia.com/intern.

Applications are accepted till February 8, 2013. I’ve known quite a few people who have finished this exceptional training and loved it! It’s helped them get jobs and open many new doors.

Wanted: Leaders!

Laurie Kelley February 6, 2012

You may have heard that the hemophilia community is a bit worried about developing leaders. Our generation is getting “old,” and has fought our many battles, and continue to fight on the insurance front. We need young people with talent, ambition, compassion and vision to carry the torch in the future.

But are we victims of our own success?

We’ve made life good for the new generation of kids with hemophilia, and as expected, they are having good lives–and disappearing from our radar screen. We need them to come back, to pitch in, to help, to lead.

To address this, Bayer developed a unique program in our community to train young people to think about careers in hemophilia, or at the very least, to give back through volunteering. Bayer HealthCare offers the Bayer Hemophilia Leadership Development Program (BHLDP), and expanded it this year by adding a community element to the internship experience. The 2012 interns selected to participate in this prestigious program will spend five weeks of the eight-week program at a local hemophilia organization.

The company is currently seeking applicants who are attending college and have been touched by hemophilia. Those interested have until Monday, March 12th to apply for the program, which runs from June 18th-August 9th. Participating interns will engage in leadership training, hands on business projects, marketing and communications strategies, and help support the local hemophilia community. Additional details and the application can be found at
www.livingbeyondhemophilia.com/intern.

Of the many organizations that applied to participate, four chapters were chosen to mentor and manage an intern. They are the Arizona Hemophilia Association, Bleeding Disorders Alliance Illinois, Hemophilia Foundation of Upstate New York – Rochester and Texas Central Hemophilia Association.

The 2012 program begins with a two-week orientation at Bayer HealthCare’s U.S. headquarters in Wayne, NJ, where the interns will receive training on communications, problem solving and leadership skills as well as work with people in a number of departments to gain insights into how various parts of the company operate. Interns will spend the following five weeks at the selected hemophilia organization, where they will gain first-hand knowledge about the work done on a local level and engage in projects building on the skills developed earlier in the program. During the final week at Bayer, the interns will report on their experience and present a project developed with their local chapter.

Bayer established the Hemophilia Leadership Development Program in 2007. Since that time, many program participants have become more active hemophilia advocates and have gone on to careers serving the community, government and industry.

This is a fantastic opportunity. If you know of a young person with hemophilia who has leadership potential, please have them apply today!

Great Book I Just Read
The Killer of Little Shepherds: A True Crime Story and the Birth of Forensic Science by Douglas Starr (Kindle edition)

Starr never fails to engage. From 1894 until 1897 in the countryside of France, Joseph Vacher, a vagabond and discharged military enlistee, began a bizarre killing spree, from young women to little shepherd boys. Dispatching his victims rapidly, mutilating or violating them, and moving on immediately, he became a killing machine that terrorized France and baffled police. Forensic science was nearly nonexistent, and police imprisoned innocent people based on hearsay. Meanwhile, Dr. Alexandre Lacassagne, France’s leading expert in legal medicine and professor at the University of Lyon, dedicated himself to the case and in the process advanced forensic science. Ultimately, this became one of the first cases of determining what is legal insanity, as Vacher, once apprehended, became his own counsel in effect and pushed to be declared insane. A battle ensues between Vacher and Lacassagne, which would have repercussions for decades to come. Fantastic story, well written, and enlightening. Four/five stars.

Do you have what it takes to become a leader?

Laurie Kelley January 10, 2011

Author and leadership guru John Maxwell writes, “Whatever the question, the answer is leadership.”

Here’s a great program and a great opportunity for some qualified young people in the hemophilia community: a leadership-training program that pays. The Bayer Hemophilia Leadership Development Program is a unique opportunity to learn about hemophilia from an industry point-of-view by serving as an intern at Bayer, makers of Kogenate FS.

The internship is on location at headquarters in Wayne, New Jersey. Participants will be paid $15 an hour. During the internship, participants sharpen leadership skills in real-world scenarios that enrich the hemophilia community. Internship modules include:

▪ leadership training classes to develop presentation skills, learn about effective project management, and discover successful
time management techniques.
▪ a personal challenge project which allows interns to apply their new skills to design and create a project
▪ a visit to the Bayer manufacturing facility in Berkeley, California
▪ a meeting with healthcare public policy professionals to see how effective advocacy relations impact legislative decisions
• an exploration of marketing and communications strategies

This is an incredible opportunity. I know quite a few of past participants and they have all greatly enjoyed their experience, and learned a lot.

Applications are due by Monday, March 14, 2011. All applicants should be college students (sophomore through senior year), with a strong tie to hemophilia, and who demonstrate a commitment and interest in being a future leader in the hemophilia community.

Visit http://www.livingbeyondhemophilia.com/webapp/internships/forms-for-bayer-internships.jsp to learn more!

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