S.T.A.R. Children Relief

Thank You from Ukraine!

Many readers have asked how they can help families with hemophilia during the terrible situation in Ukraine. No one knew for a while; factor cannot be shipped in and hemophilia families were probably on the move. The Ukraine Hemophilia Society posted that they were holding on and had factor.

Arsenii Mylyk gives thanks!

Then we heard from my long-time friend and colleague, Adriana Henderson of North Carolina, formerly of Romania, who operates S.T.A.R. Children Relief, a nonprofit dedicated to helping children in Romania with medical needs. Many years ago Adriana had asked for help for a child with hemophilia in need of surgery and Project SHARE helped. We became friends ever since!

Adriana shared that Daniel, the president of the Romanian Hemophilia Society, had received into his home a refugee family from Ukraine with hemophilia. The Mylyk family left everything behind. Instantly, we knew we could help. I started a GoFundMe, with all proceeds going to S.T.A.R., and then to the family. This past week we heard from the family.

Adriana writes: “Thank you for fundraising for the family from Ukraine who found shelter in Romania. And thank you, Daniel Andrei, for hosting the family. We are sending $2,000 for the upkeep of the family, $1,650 raised by you through your friends. Thank you to all. Their son Arsenii drew this beautiful friendship flag, and below is their letter of thanks to you and your friends.”

“Good afternoon, dear Laurie Kelley! We are the Mylyk family from Ukraine. On February 24, we woke up from explosions outside our window. Taking our smartphone with the news, we realized that the war had begun. It was a terrible and incomparable feeling. We were in hiding for several days and did not understand what to do. Run? And to where? Is there a war in that region? And how to get there? Will we be able to stay in the car in such a cold?

“We were hiding! We hid in a shelter and went into the apartment for just a few minutes. At one point, Chris Bombardier wrote to me and offered to help me with a factor and accommodation with the head of the hemophilia organization in Romania. We thought for a long time because for us it was the first trip abroad, especially in such military conditions. It was painful and hard for us to leave our home and go into the unknown. The only thing we took with us was the remaining factor and 3 jackets. Before that, we were sheltered in western Ukraine by a wonderful woman, whose grandson is also a hemophiliac! Upon arrival in Romania, we were surprised by the kindness and help of Daniel Andrei and his extended family. Wonderful people who gave us everything we needed. Chris Bombardier did not forget us, wrote to me, worried about our health and our move, offered help.

The Mylyk Family

“And one fine day, Daniel came to us with wonderful information that Laurie Kelley from America wants to help us financially, for our needs, and is ready to send us a sum of money to help our son, for transportation costs and paperwork, food and so on. We would very much like to thank you personally, everyone who joined this help and the large family of hemophiliacs, their relatives throughout America and the entire planet. We thank you not only for your personal assistance and initiative, but also for the huge contribution that the United States makes to our victory over Russia. This is very important at such a difficult time for our country. Twelve years ago, hemophilia knocked on our doors with the birth of our son. Yes, this is a complex and serious disorder that requires factor, forces and attention of society and doctors. But this disorder introduced our family to incredibly kind, sympathetic and generous people. These people showed us what great and wonderful things people can do when they believe in God, success and miracles! Let peace come to Ukraine! Thank you very much to the community and family of people who are united by hemophilia!”

What on earth are you doing for heaven’s sake?

Remember this slogan? It was found on bumper stickers in the 70s, from what I recall. Maybe this was my first attempt at editing: were they trying to say, “What on earth are you doing, for heaven’s sake?” Like, “Are you crazy or something?” Or maybe, “What on earth are you doing for Heaven’s sake?” as in, what’s your purpose here on earth before you go to Nirvana, Heaven or get reincarnated as an insect?

I thought of this bumper sticker when I read the essay submitted to me by friend and colleague Adriana Hendersen. She is a one-woman agent for change in Romania, and has changed the lives of dozens of boys forever. This is excerpted from the November issue of my newsletter PEN. In case you missed it, read on…

Why Am I Here?

“Why are we here?” is a philosophical question concerning the purpose of life.

“I have asked myself many times why I am here, but with the emphasis on here, in the US.

“In 1970, I seemed destined for a different life, in Romania. My father was sentenced to spend his life in a communist prison for criticizing the government’s decision to deny the family the right to emigrate; and we, his children, were supposed to be sent to reeducation school. But we didn’t know that our situation had been receiving international attention. Following pressure from the United Nations and various churches, the Romanian government asked us to leave Romania immediately. It was a magnificent, magical, miraculous exit. We were the first family in Romania to leave legally, not only with a passport for emigrants, but also carrying an American green card.

“As a young girl I never once looked back, or even thought about what I had left behind. I thought I would forget Romania, and hoped I would forgive. I pursued everything the US offered: freedom and opportunity. I had a wonderful family, a big house in the suburb, cars, trips around the world, a closet full of designer clothes. Most important, my family was healthy. Yet it felt like something was missing.

“When the Iron Curtain fell in 1989 and images of the harsh realities in Romania besieged the world, I could not ignore my country and people anymore. The question “why am I here” started to nag me.

“As a child, all I could think of was survival. Now, with my newfound freedom came a desire to succeed. When success wasn’t enough, I started to look for significance. I wanted to give back, to make a difference, to acknowledge the blessings that were bestowed on me and possibly see if there was a reason for my being here.

“I was at a loss about what I could do, and for years I looked for some cause I could identify with. Then I met a woman who was looking for medicine to help a boy with hemophilia in Romania; he needed corrective foot surgery to walk. I barely knew anything about hemophilia, and the little I knew was mostly inaccurate. After a quick and shocking lesson on hemophilia, I began a quest to find the miracle medicine. It wasn’t easy, and the more I searched, the more I lost hope. I made hundreds of phone calls, all over the world, trying to source any kind of donation. It was a test of endurance and tenacity. I had one phone call left to make, the call to Project SHARE. They immediately shipped the factor, and the rest is history. That was more than 10 years ago.

“Since then, I know why I am here. The boy had surgery and his wish was granted: he is now walking. That’s when S.T.A.R. (Start Thinking About Romanian) Children Relief was born. S.T.A.R. is a multipurpose organization with an emphasis on healthcare and a focus on blood disorders. Through S.T.A.R.’s efforts and donated factor concentrate, many Romanian boys and adults with hemophilia have had their lives improved or spared. On World Hemophilia Day, April 17, 2004, S.T.A.R. organized the first-ever hemophilia symposium in Romania. And S.T.A.R. organizes and hosts Camp Ray of Hope, in its sixth consecutive year this past summer, the only camp for children with hemophilia in Romania.

“S.T.A.R. is also Save One Life’s partner for Romania. We have 59 children and adults with hemophilia sponsored through Save One Life. I know most of the beneficiaries personally, and have visited them at home or seen them at camp where they play with carefree enjoyment. I get to see them smile and hear them laugh. It feels awesome to be so intimately and personally involved.

“I never thought I would be involved in charity or volunteer work. I don’t have the personality. I am shy, withdrawn, introverted, not the type that would organize international conferences and fundraise for summer camps. It’s said that we, in the nonprofit world, change other people’s lives. That’s true, but in the process, our lives change too. We have a purpose, our life has meaning, we do things we thought we could never do. That’s a terrific feeling! We give a little, but we get a lot back.

“I know—Romania is close to my heart, and I have a vested interest in helping my people. But to anyone who, like me, is searching and wondering if there is something more than just the fleeting pleasures in life: if you want to make a difference or improve a life, while you improve your own, consider sponsoring a child. Look at the Save One Life website, where many with hemophilia are waiting to be sponsored. Pick a country, pick a child. Put a sparkle in those eyes that look so hauntingly and sadly at the lens. Bring a smile and a chance for a better life. It’s a small gesture that will bring priceless rewards.
I know why I am here. Do you?”

Maybe the bumper sticker needs to simply say: “I know why I am here. Do you?”

Adriana Henderson is founder and president of S.T.A.R. Children Relief, a nonprofit dedicated to helping Romanian children in need. She was born in Romania and immigrated to the US, where she has lived for the past 40 years. She is a graduate of UCLA, and lives in North Carolina with her husband Tom, who often helps with her charitable work. They have two daughters. Visit www.starchildrenrelief.org

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