Tsar Nicholas II

The Royal Disease and Russia

Both the Royals and the Russians have been making the news this past year, not much of it good. For the Royals, it’s mostly just the Markles (on their “Privacy Tour”). For Russia…. well, let’s not go there.

While Russia is making a ruinous name for itself these past two years, it’s famous for its hemophilia history. Which originated from the English Royals.

We noted last week that it’s Bleeding Disorder Awareness Month, and we shared some popular myths about hemophilia. One was that hemophilia has been dubbed “The Royal Disease.” I shared in detail how this happened, and who it affected in my blog here.

But the most famous outcome of a genetic link in the English Royal family happened when Princess Alix, whose grandmother was Queen Victoria, a carrier of hemophilia B, married Tsar Nicholas II of Russia. Queen Victoria had nine children, of whom two were carriers (Alice and Beatrice) and one had hemophilia (Leopold). It was well known that hemophilia was now running in the family.

Alix, nicknamed “Sunny” by Nicolas, gave birth to Alexis (or Alexei), after already having four girls. They got their heir to the throne. But Alexis had hemophilia.

Alexis had no access to clotting factor of course; this was 1904, after all. The royal family came rely on a person of ill repute: Rasputin, the mad monk. He had a lascivious reputation but also a track record of helping people in pain, probably through hypnosis. Rasputin became ingratiated into the royal family and helped also to bring down the Russian monarchy. It’s been proposed that Nicholas II was so distracted by his son’s suffering due to hemophilia, that eventually he lost his grip on the monarchy at a time when the Bolshevik Revolution was poised to strike. And it did. It has been proposed that hemophilia changed the course of World War I, and changed the course of history. The Cold War, the Soviet Empire… all find their roots in the royal palace of the Tsar and a little boy with hemophilia.

Order Alexis: the Prince Who Had Hemophilia here for your child with hemophilia.

Starring… Rasputin!

Doug and I went to see the movie Free Guy, starring the ever-hilarious Ryan Reynolds, a thoroughly delightful movie that seems like a cross between The Truman Show, Inception and Tron. We loved it. But it was the previews that caught my attention. The King’s Man is the upcoming prequel to the Kingsmen series. It’s set during World War I, and Rasputin will make an appearance, doing flying sidekicks and all sorts of things you don’t find in history books. As this week is the anniversary of the murder of Tsar Nicholas II and his entire family in a basement Siberia, it got me thinking about Rasputin portrayed in film. He’s such a character, you almost could not make him up. But he was real and he had a huge role to play in the life of Alexei, the prince who had hemophilia, and the overthrow of the monarchy. Pretty sure he had nothing to do with the King’s Man.

Where else has Rasputin appeared? I found the following on the internet. Within nine months of Rasputin’s murder in 1917, there were two low budget silent films about Rasputin. Producer-director Herbert Brenon released The Fall of the Romanoffs, and producer William A. Brady released Rasputin, the Black Monk.

There was Rasputin, a 1929 silent film, produced by Momento Film Company and directed by Nikolai Larin. Rasputin, The Holy Devil is a 1930 German film produced and directed by Martin Berger. Rasputin, Dämon der Frauen was a 1932 German film;  and Rasputin and the Empress, was a 1932 MGM production, with Lionel Barrymore playing Rasputin!

There was La Tragédie impériale, a 1939 film based on the book by Alfred Neumann; Raspoutine, a 1953 French film directed by Georges Combret; never released in the United States or England. The Night They Killed Rasputin, a 1960 film;  Rasputin the Mad Monk, a 1966 Hammer film. Hammer was known for the horror genre so it seems right that Rasputin was played by Christopher Lee!

J’ai tué Raspoutine (I Killed Rasputin) is a 1967 film featuring an interview with the real Prince Felix Yussupov, who participated in his murder.

My favorite is the spectacular Nicholas and Alexandra, a 1971 epic British film based on the book by Robert and Suzanne Massie, who have a son with hemophilia. Rasputin was expertly played by Tom Baker.

Rasputin: Dark Servant of Destiny is a 1996 HBO TV film, in which Rasputin was played by one of my favorite actors Alan Rickman, who won a Golden Globe for his portrayal.

And finally the upcoming The King’s Man, a 2021 Matthew Vaughn film.  Welsh actor Rhys Ifans will play Rasputin, who will pull a lot of martial art moves apparently!

And surprise! Rasputin, an upcoming film to star Leonardo DiCaprio as Rasputin! Maybe this will be his second Oscar?

Sunday Night at the Movies

Movies are on my mind for two reasons: 1) we finally broke down and bought a real TV (no one in our house has watched TV or movies in months, possibly years, since we cancelled cable and then our TV died, and 2) I was privileged to watch the new documentary “Bad Blood,” by director Marilyn Ness. This movie debuted July 28 in New York City, and I was invited and couldn’t attend due to travel. You can watch the trailer on YouTube. It’s about history, our history, the history of hemophilia, AIDS and hepatitis C. I want to blog about what I saw, but…. you’ll just have to wait for the review to come out in PEN in November!

Instead, let me offer you another movie about hemophilia history: “Nicholas and Alexandra.” Made in 1971, based on the Pulitzer Prize winning book by Robert K. Massie, who is the father of Bob Massie, who was in the film “Bad Blood,” it’s the story of the most famous historical figure with hemophilia: Prince Alexis, heir to the Russian throne.

Massie boldly hypothesized that hemophilia was influential is causing the Russian Revolution of 1917, in which the Communist came to power, as the royal family was preoccupied with their only son’s suffering from untreated bleeds. Enter the evil, mad monk Rasputin, one of history’s most easily recognized figures, who was able to hypnotize the boy and calm him, and gain control over the affairs of state, and you have a true story that is almost too unbelievable to be true. And it starts as a beautiful love story between the royals. I loved the book, but the movie deserves praise too.

Directed by Franklin J. Schaffner (known for “Planet of the Apes” and “Papillon”), it was nominated for Best Picture, and is sumptuous in its costumes, settings and scenes. The acting is superb. There are heart-wrenching moments watching the parents agonize over the pain their son suffers. You’ll learn about Russia, history, hemophilia and human nature. The film ends abruptly and brutally in August 1917, as the story of the Romanovs did, in real life.

Rent it on Netflix this week, or buy it on eBay. It’s worth having; if your child has hemophilia, be sure they watch this to know the importance their disorder made to the world. World War I changed the entire world forever, and so perhaps, did hemophilia.

Great Book I Just Read

The Turn of the Screw by Henry James
And speaking of classics, I read Henry James’s The Turn of the Screw in one night. A psychological thriller, beautifully written, and it always keeps you guessing. This is one book meant for a book club. In the nineteenth century England, a governess is sent to live in a huge, remote mansion, to tend to a young brother and sister who have no mother. She soon believes that the former caretaker, Peter Quint, has returned from the grave to possess the children’s souls… or is she only imagining the apparitions, the noise, the children’s own secret glances and whisperings, as though they were in on the scheme? Cleverly written, there appears no right or wrong answer, despite the happenings and events, or is there? Enjoy a spooky night at home with this book, also made into an excellent movie by the name of “The Innocents.” Four stars.

Anniversary of Tsar’s Death


Today, 89 years ago, Tsar Nicholas II of Russia and his entire family, including Alexis, the prince who had hemophilia, were assassinated in Siberia. This event shocked Russia and the world, and the elimination of the Tsar and the monarchy fueled a bloody civil war in which tens of millions of Russians died. The deaths of the Tsar, Empress Alexandra and their five young children have been the subject of many books and movies. One recent book is “The Kitchen Boy,” by Robert Alexander, which I just happened to read last night, not even aware that I was reading it on the eve of the anniversary.

The book is fiction, but draws on certain facts, and is narrated by the “kitchen boy” who served at Ipatiev House, where the royal family was imprisoned. As a servant, he had access to watch all that happened at the house, including the family’s death. He becomes close to the royals, and details their personalities, flaws, loving manner toward one another, and even their brutal deaths. The “kitchen boy,” now 94, lives in Illinois and wants to share some details he has never revealed before to his granddaughter. He records his memoirs, which becomes the narration of past events in the book. He eventually reveals who killed the Tsar and his family, and what became of the two missing bodies, believed to be Alexis and Anastasia (about whom there are also many movies and books). He reveals that actually Alexis and Maria were missing, and he tells how and why, and how that impacts his life, even now.

The book is easy to read–I read it in one sitting–and the language and style is a bit too easy. It reminded me of the kind of book we had to read for junior high over the summer. Interesting but light. You can almost believe the conversations and events took place, and I think that’s the best part of the book–the way Alexander makes the royal family come to life. But the book loses credibility towards the end. It tries to read like a da Vinci code a la Dan Brown, but it’s much too simplistic a plot for that. The plot takes a sudden radical twist at the end, which kind of left me head-scratching. I just didn’t get it.

Part of the ending included reference to someone with hemophilia (no spoilers) who had mild hemophilia, apparently had no manifestations of hemophilia his whole life, then got into a car accident, hit his head on the steering wheel and died at the scene. I am not a doctor, but this just didn’t sound accurate to me. There were plenty of accurate references to Alexis’s hemophilia, and how the poor boy suffered.

All in all, I would recommend this as a read, but don’t expect a great historical book or a great mystery. It’s light, not perfect, but a great summer beach book that can be read fast, and you may come away with a new appreciation of the Russian royal family. Hemophilia is a pervasive theme throughout the book, and plays a part in solving the mystery of what happened to the royals, and the two missing bodies. (Two stars out of four)

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