leadership program

Want to be a Leader?

Leonardo di Vinci once wrote: Ask
advice of him who governs himself well. 
Learning to govern oneself is a principle of leadership, and can be taught and then honed. But not just through books. Often, the best leadership tenets are learned in real life. Bayer is offering a chance for young, potential leaders to govern themselves, test themselves and put their burgeoning leadership in action.
The Bayer Hemophilia Leadership Development Program is one of my favorite programs in our community. It’s a rare opportunity to be in the thick of decision-making, action and marketing. Read about it below, and apply at www.HemophiliaInternship.com! Deadline is March 13!

 Start shaping your future and your community! 
Apply today for the Bayer Hemophilia Leadership Development Program. 
APPLICATIONS ARE DUE NO LATER THAN 
Friday, March 13, 2015 at 11:59 p.m. ET 
To learn more and complete an application, visit www.HemophiliaInternship.com
 Making a change in the world begins by making a change in your community! Apply to be an intern through the Bayer Hemophilia Leadership Development Program and begin to learn how to be the change YOU want to see in the world. 
Students enrolled full-time in college who are touched by hemophilia can apply now for the opportunity to: 
Engage in leadership training and hands-on business projects 
Learn how to support the hemophilia community as a potential future leader 
Apply now for a six-week paid internship at Bayer HealthCare’s U.S. headquarters in New Jersey. 
In addition to working directly with leaders at Bayer, selected interns will: 
Collaborate with local hemophilia organizations and learn about efforts to support the hemophilia community and partnerships with business professionals 
Meet with healthcare public policy professionals to experience first-hand how effective advocacy relations impacts legislative decisions 
Be responsible for developing a project that will be presented to Bayer Senior Management.
Learn more at   www.hemophilialead.net

Great Book I Just Read
Take Yourself to the Top
Laura Fortrang
This is the perfect book for beginning leaders. A hard-hitting, direct and fun read about how to clarify your needs, set goals and remove obstacles to your goals. Fortrang is a life coach who shows us that without self-mastery, we will continue to be victims of our own biases, addictions, blaming mindsets, and circular thinking. A quick read, fun and impactful, you will start to make immediate changes after reading this! I’ve been reading this book for over 10 years every January to kick off the new year and get myself on track. It works! Four/five stars. 

Become a Leader! (Fast!)

We have a lot of programs in the hemophilia community, but this is one of the best. You may need a lot more than just a diploma to secure a great job; you’re competing with talented and smart people. One thing that all prospective employers look for (me included) is leadership: that esoteric quality about someone that sets them apart from the pack. You don’t always learn it in school, but you can learn it here.
I was present in 2006 when a group of great people from our community came up with this idea and presented for funding. The Bayer
Hemophilia Leadership Development Program
(BHLDP) provides college students from the hemophilia
community a unique internship opportunity to build foundational leadership
skills while also deepening their connection to the hemophilia community.
BHLDP, now in its eighth year, gives selected interns an opportunity to work
directly with the Bayer marketing team in Whippany, New Jersey. Interns also
get to experience rotations which include a public policy awareness session in
Washington D.C., a community advocacy-focused visit to National Hemophilia
Foundation in New York, and activities with Bayer’s partners. 
When discussing their favorite aspects of the internship process, the former interns commented that they were surprised—and thrilled—by the amount of real work they were able to do during their time with Bayer. “We were exposed to real meetings and real experiences,” said Lewis Chesebrough, a 2012 BHLDP intern. “We participated in a
real professional environment with people who were supportive and kind to us.”

In addition to getting to do real, meaningful work, the program also helped interns chart a course for their future. Christian Mund, a member of the 2013 internship class and a junior at Syracuse University, said that his Bayer internship helped him realize marketing was the path he wanted to pursue following graduation. “Before the internship, my local sales representative asked what I wanted to do after college; I had no idea. After I finished the BHLDP internship program, I knew marketing was what I wanted to do because the internship really opened my eyes to what I could do after graduation and now I am looking for other internships in marketing.”

Following a BHLDP internship, many former interns have stayed involved in the hemophilia community. Rich Pezzillo, a member of the 2007 internship program, is now the Communications Director at the Hemophilia Federation of America (HFA). “The BHLDP internship helped give me direction on what I was most passionate about and how I felt most
fulfilled,” said Pezzillo. “I now have opportunities to help other young adults that may not have the proper resources or the family to talk to about what it is like to have a bleeding disorder.” And Aaron Craig, a member of the 2010 internship class, started a company called Microhealth that developed an app for the hemophilia community that he says is like
“Facebook for the health care system of hemophilia.”

Bayer is currently accepting applications for the 2014 Bayer Hemophilia
Leadership Development Program. Applications for the six-week, paid internship
are due by Friday, February 28, 2014. (Yeah, I put that in red, so move on it!) For more
information and to apply visit https://www.livingbeyondhemophilia.com/webapp/index.jsp

For US patients only.
(Truth in advertising: The above is an unpaid announcement for the common good)
Great Book I Read
Act Like a Lady, Think Like a Man: What Men Really Think About Love, Relationships, Intimacy, and Commitment   by Steve Harvey

This was a gift from my co-worker Zoraida, who obviously thinks I need help in the dating department. She might be right, after reading this hysterical and no-nonsense view of how women should date from a man’s point of view. Blunt and taking a somewhat dismal view of men in general (think “dog training”), there are still some nuggets of truth here and it’s a whole lot of fun to read anyway! Men are not just from Mars, they are an entirely different species altogether and in sever need of BF Skinner’s behavioral training. I read it in one night and laughed a lot. And learned a few things. Three/five stars

Brainstorming in New Orleans


One of the greatest things about working in the hemophilia community is the opportunity to rub shoulders with some incredible people, as I did this weekend. I am a member of the Bayer Multidisciplinary Board, which met Friday in New Orleans for dinner, and then all day Saturday for an informational and brainstorming session. With me were: Mr. Terry Tenbrunsel, VP Bayer; Dr. Craig Kessler, chair of MASAC and chief hematologist at Georgetown University; Dr. Prasad Mathew, medical director of the hematology program at the University of New Mexico; Mike Rosenthal, president of Hemophilia Innovations; Tom McNulty, COO of Ancillary Care Managment; Kyle Landskroner, PhD, Medical Science Laiason at Bayer; Derek Nate, Regulatory Affairs, Bayer; Marianne Drysdale, Senior Director, Hematology Marketing, Bayer; Shari Bender, parent of a girl with hemophilia, whose husband Steve sits on NHF’s board of directors; Kyle Callahan, former president of HHS; and two special guests–Rich Pezzillo and Patrick Haggerty, two incredible young men with hemophilia who just graduated from Bayer’s leadership program, dubbed “Hemophilia University.”

With such an all-star cast, you can imagine the breadth and depth of discussion. Tom allowed us to spend two full hours just on the subject of reimbursement, and his knowledge is only surpassed by his passion. His message? The bleeding disorders community is in for more permanent changes, and we need to unite, form a solid message to payers, and act. This is actually what we at LA Kelley Communications have been preaching since November 2004 through our publications and presentations: PBMs are here to stay, payers are gaining more control, and beware of being complacent, too trusting and too entitled. Nothing is guaranteed anymore, and we will need to fight to keep our choice of provider and product.

Lending great exertise to the subject were Dr. Kessler, whose HTC runs a 340B program, and Kyle Callahan, former head of the largest hemophilia homecare company. Kyle may be in retirement but he simply knows too much to let him drift away!

Kyle Landskroner gave a wonderful overview of Bayer’s scientific acheivements and an update on their longer lasting Kogenate FS, which is in clinical studies. The results are very promising. Imagine being on prophylaxis, but only having to take one shot a week, that lasts all week!

But the highlight of the day was truly the young men, Rich and Pat. Rich is a good friend of mine, and Pat I have known about since he was a baby! His mom Mary and I have been pen pals for about 17 years. Mary submited stories about Pat for my first edition of “Raising a Child With Hemophilia,” and I wish I could say the advice I gave her helped to raise this amazing young man! But the credit goes to her and her husband, and to Pat himself. How wonderful for me to see him at age 20, involved in the community, attending college, and hoping to go into sports management. Yes, sports as a career! Pat is a phenomenal swimmer, athelete, and student. Hemophilia doesn’t get in the way of his dreams.

Rich Pezzillo is simply a legend in our community, at the ripe ol’ age of 23. He has been through tremendous medical and emotional ordeals due to his inhibitor, but no one has more vision, hope or perseverance than he has. He is one of our future leaders, mark my words, and someone who is dearly cherished by all. Both young men gave a fabulous overview of their summer internships at Bayer. They learned about product manufacturing, marketing, clinical studies, community partiticpation, presentation. They helped create marketing materials and met with Bayer’s PR group to develop a strategy for bringing them to market. Incredible lessons in business. Bayer’s leadership program is a unique, amazing internship for qualified young people with hemophilia that is now in its third year. Rich and Pat have shown that it opens doors in business as well as opens minds. Its goal? To train emerging leaders in our community. Our generation cannot keep running the show forever, and Bayer has the vision to start training these interns while they are young, from inside the industry. Brilliant, and congratulations to Rich and Pat for an excellent presentation–you make us very, very proud! And our deepest thanks to Bayer, especially to Terry, for the vision to create this program, and to extend so much personal time investing in the hemophilia youth, our future leaders.

To learn more about Bayer’s summer youth leadership program, visit www.livingwithhemophilia.com

(Photos: Patrick Haggerty discusses his internship; Rich Pezzillo and Pat share their experiences; Laurie with Pat, whom she has known about for 17 years and finally has met!)

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