Our Hemophilia Community

Pfizer’s New Video Series Can Help You Have More Constructive Conversations

Dawm Rotellini of the NHF introduces Constructive
Conversations Video

Have you ever had a difficult discussion about your or your
loved one’s hemophilia? Have you gotten into a heated dialogue about
restrictions? Do you wish you had some strategies to have more productive
interactions with your physician or hemophilia treatment

Effective communication can play a large role in
successfully managing hemophilia, navigating difficult discussions during times
of transition and building strong relationships between patients, caregivers
and healthcare teams. 
A new educational video series from Pfizer Hemophilia
called Constructive
aims to provide the community with tools and resources to
encourage more caring, constructive, and effective conversations among those
impacted by hemophilia.
Originally introduced by Pfizer at the NHF annual meeting,
the Constructive Conversations video series allows you to review tips on
communicating more effectively in the comfort of your home. The videos portray
real-life scenarios that you may face, and show you how to construct a
conversation differently to help achieve a better outcome. Each video uses two
different approaches: one conversation using a more commanding style also known
as a “directive” approach and the other conversation using a more caring,
enquiring style also known as a “constructive” approach.
Visit www.HemophiliaVillage.com today to watch the videos
and sharpen your communication skills! 
And check out Our Hemophilia
on Facebook to learn about Pfizer offerings.
The content of this post is provided and sponsored by

Good Book I Just Read

The New Single
Tamsen Fadal 

My teammate Zoraida bought this for me as a present. An easy read, snappy and filled with good advice, Emmy award-winning TV

producer  Fadal assesses her life pre-and post-divorce and what she has learned. While mostly geared, I think, for someone new to self-assessment, probably for the 20-30 year old crowd (sad to think they would be divorced then!) as some concepts are really obvious (eat well, get enough sleep) it’s still a great reminder on how to be yourself, care for yoruself, develop yourself and not lose your self in a relationship. Women try way too hard to please, sacrifice a lot in the name of relationship, and maybe that needs to change? Two/five stars.

Financial Support Programs Offered By Pfizer

There are a lot of great programs available to people in our bleeding disorder community. I’ve been sharing some of them recently. Here’s another great one from Pfizer!
Managing hemophilia is complex. Patients and caregivers face
medical, emotional, social and financial challenges. Understanding therapy is
just one part of the equation, Pfizer strives to provide support beyond science
and innovation. The company offers many educational resources and financial
assistance programs for eligible patients who infuse with Pfizer Hemophilia
Recombinant Factor products. 
Factor Savings Card Program provides financial
support to eligible patients to help cover out-of- pocket co-pay, deductible,
and coinsurance associated with their Pfizer factor costs. Eligible patients
can save up to $5,000 annually. The Card is not health insurance and will only
be accepted at participating pharmacies.
RxPathways is a comprehensive assistance program
that provides eligible patients with a range of support services, including
insurance counseling, co-pay assistance and access to medicines for free or at
a savings.
Pfizer Trial Prescription Program allows
eligible patients new to Pfizer factor products to receive a one-time supply up
to 20,000 IU at no cost.
To learn more about these programs, visit the financial
support page on Hemophilia
. On this site you’ll also find tips and resources to help you and
your family navigate the various challenges that can arise at different life
stages. Another great way to stay up-to-date on the support provided by Pfizer,
and to hear from others in the community, is to join the conversation on the Our Hemophilia Community Facebook page. 
This content was provided and sponsored by Pfizer.

Great Book I Just Read
Mustaine: A Heavy Metal Memoir [Kindle]
Dave Mustaine and Joe Kayden

Sometimes called the founder of thrash metal, Mustaine shares his troubled and abusive childhood, his calling to music in the 80s, his short foray as a founder of Metallica, his sudden ouster, and his inspiration to form Megadeth, one of the top thrash and heavy metal bands of all time. Mustaine was driven to create, recreate, fight others and destroy himself with drugs. That he is alive is a miracle. Burning through 17 different band members in a four piece band, Mustaine is not easy to deal with. Here he is candid, acknowledging his eternal grudge against Metallica and his own abrasive personality. Meeting his wife turned his life around, though not enough to stay off drugs. Finally, in a surprise ending, he finds peace and sobriety. I only wish the book could have delved as much into his creative process (how did he write such amazong songs?!) as it did into his drug usage and rehab.
Four/five stars.

Pfizer’s Soozie Courter Scholarship Program Turns 18!

I am honored to say I knew Soozie Courter: she was a “neighbor,” just living in the next town, and we one time shared a ride to the airport. A lovely, committed and intelligent woman, taken too soon. Below is a special annoucement by Pfizer, to benefit the community in the name of this wonderful woman. — Laurie

Pfizer Hemophilia is excited to
announce the 18th year of the Soozie Courter Scholarship program.
Named to honor a valued and respected friend of the hemophilia community, the
Soozie Courter scholarship is a tuition assistance program sponsored by Pfizer that
aims to help students advance their academic goals.
Scholarships are awarded to applicants
who present the best combination of a creative and persuasive essay, excellent
recommendations and superior academic standing. For the 2015-2016 academic year, Pfizer will
·       Five $4,000 graduate scholarships
·       Ten $2,500 college scholarships, including vocational
Bowles, 2014 Soozie Courter scholarship winner, is using the scholarship funds
he was awarded to help him obtain a Master of Public Affairs degree at Columbia
University in NYC and plans to eventually pursue a PhD in Business Policy. He
ultimately hopes to work with local state governments on policies to help
improve business development in the rural south. According to William, “coping with a genetic
disorder does not mean sacrificing commitments, dreams, or career aspirations.”
To be eligible for the scholarship,
students must have either hemophilia A or hemophilia B and be a high school
senior, have a high school diploma or general education development (GED)
credential, or be currently enrolled in an accredited junior college, college
(as an undergraduate or graduate student), or vocational school. All completed
applications must be postmarked or sent via e-mail no later than
May 20, 2015. To download an application, please visit here. To learn about the
inspiring stories of past winners, check out the Pfizer Facebook Page, Our Hemophilia Community.

The 18th
anniversary of the Soozie Courter scholarship illustrates the long standing
pledge by Pfizer to help patients with hemophilia further their education. To
learn more about other ways Pfizer is supporting the hemophilia community,
visit Hemophilia Village. From diagnosis to
dating, the newly refreshed site provides tips, resources, and words of wisdom
to help you navigate through the various challenges that arise throughout the

This is a paid announcement by Pfizer.

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