Pfizer

Pfizer Releases Exciting New Features for HemMobile App

Laurie Kelley August 23, 2015

I always say that with a background in statistics and economics, I love collecting data. I have a spread sheet of all my workouts going back years, tracking how many miles run, weights lifted and more. I keep a spreadsheet of all the books I’ve read for the past 10 years! And I don’t even need to do this stuff. 
One thing you should do if you have hemophilia is track your bleeds. Check out Pfizer’s app for tracking all things hemophilia.—Laurie
Hemophilia can be difficult, but
tracking it doesn’t need to be. Thanks to the Pfizer Hemophilia Team, HemMobile
now provides activity tracking and is integrated with the new HealthTM
app for iOS 8 and Google Fit™ for AndroidTM. This will allow you to seamlessly
transfer data from wearable devices and other fitness apps right into
HemMobile. With the ability to track activity along with your infusions, you
can have access to important information you need to have more informed
discussions with your physician. This is particularly important for the
hemophilia community, because maintaining an active lifestyle can help to
strengthen joints and protect against bleeds.
The updates to the app are a result of
partnering closely with not only expert developers and physicians, but also
members of the community who use the HemMobile app every day.
With the latest version of HemMobile you can:
·     
Log activities, infusions
and bleeds
·     
Share single consolidated
reports with your treatment team
·     
Set reminders for resupply,
appointments and much more
·     
Find nearby hemophilia
treatment centers and National Hemophilia Foundation chapters
·     
Personalize your profile
Learn more about Pfizer’s commitment to
innovate and tailor technology to meet the needs of patients within the
hemophilia community by visiting www.HemophiliaVillage.com. The app is available for download in Apple’s App Store and
through Google Play.
Also connect with others in the Hemophilia
community and stay up-to-date on hemophilia resources, support and news over on
Facebook at www.Facebook.com/OurHemophiliaCommunity.
iPhone is a
trademark of Apple Inc., registered in the U.S. and other countries. Health is a registered trademark and App Store is a
service mark of Apple Inc. Google Fit is a registered trademark, and Android
and Google Play are trademarks of Google Inc.
The content of this post is provided
and sponsored by Pfizer.
Interesting Book I Just Read

The Stranger Beside Me [Kindle]
Ann Rule
The original story about serial killer Ted Bundy, who was executed in 1989 after killing many young women. Author Ann Rule just recently died, and when I read about her death, recalled I had read this book decades ago and wanted to revisit it. My writing has matured a bit because what I thought was an excellent book is actually pretty mediocre. Rule’s claim to fame is that she worked next to Bundy at a crisis hotline center, and became friends with him through the years. Oddly, as a crime writer, she was commissioned to do a book about the serial killings of the young men of Washington and Utah, never believing it was Bundy, even when all evidence seemed to point to him.  As a journalist, Rule is very dry and factual (this is no In Cold Blood), and yet, she interjects her own feelings about Bundy constantly, almost bizarrely. She was “frightened” when in prison he threatened to commit suicide. Rule writes much too much about Bundy’s love triangles, and not about the investigations. There’s a level of depth missing here; we never learn or approach why Bundy behaved as he did. We get a good chronology, but little insight. It’s a decent read: chilling, captivating, but at times too dry and lacking, with too much of the author’s feelings and personal life interjecting and interrupting. The update in the front is very choppy and detracts from the book—should have been placed in the back. You may note that the movie Silence of the Lambs’ antagonist used Bundy’s trick of luring women. Two/five stars.

Financial Support Programs Offered By Pfizer

Laurie Kelley May 31, 2015

There are a lot of great programs available to people in our bleeding disorder community. I’ve been sharing some of them recently. Here’s another great one from Pfizer!
Managing hemophilia is complex. Patients and caregivers face
medical, emotional, social and financial challenges. Understanding therapy is
just one part of the equation, Pfizer strives to provide support beyond science
and innovation. The company offers many educational resources and financial
assistance programs for eligible patients who infuse with Pfizer Hemophilia
Recombinant Factor products. 
·      
Factor Savings Card Program provides financial
support to eligible patients to help cover out-of- pocket co-pay, deductible,
and coinsurance associated with their Pfizer factor costs. Eligible patients
can save up to $5,000 annually. The Card is not health insurance and will only
be accepted at participating pharmacies.
·      
RxPathways is a comprehensive assistance program
that provides eligible patients with a range of support services, including
insurance counseling, co-pay assistance and access to medicines for free or at
a savings.
·      
Pfizer Trial Prescription Program allows
eligible patients new to Pfizer factor products to receive a one-time supply up
to 20,000 IU at no cost.
To learn more about these programs, visit the financial
support page on Hemophilia
Village. On this site you’ll also find tips and resources to help you and
your family navigate the various challenges that can arise at different life
stages. Another great way to stay up-to-date on the support provided by Pfizer,
and to hear from others in the community, is to join the conversation on the Our Hemophilia Community Facebook page. 
This content was provided and sponsored by Pfizer.


Great Book I Just Read
Mustaine: A Heavy Metal Memoir [Kindle]
Dave Mustaine and Joe Kayden


Sometimes called the founder of thrash metal, Mustaine shares his troubled and abusive childhood, his calling to music in the 80s, his short foray as a founder of Metallica, his sudden ouster, and his inspiration to form Megadeth, one of the top thrash and heavy metal bands of all time. Mustaine was driven to create, recreate, fight others and destroy himself with drugs. That he is alive is a miracle. Burning through 17 different band members in a four piece band, Mustaine is not easy to deal with. Here he is candid, acknowledging his eternal grudge against Metallica and his own abrasive personality. Meeting his wife turned his life around, though not enough to stay off drugs. Finally, in a surprise ending, he finds peace and sobriety. I only wish the book could have delved as much into his creative process (how did he write such amazong songs?!) as it did into his drug usage and rehab.
Four/five stars.

Pfizer’s Soozie Courter Scholarship Program Turns 18!

Laurie Kelley March 28, 2015

I am honored to say I knew Soozie Courter: she was a “neighbor,” just living in the next town, and we one time shared a ride to the airport. A lovely, committed and intelligent woman, taken too soon. Below is a special annoucement by Pfizer, to benefit the community in the name of this wonderful woman. — Laurie

Pfizer Hemophilia is excited to
announce the 18th year of the Soozie Courter Scholarship program.
Named to honor a valued and respected friend of the hemophilia community, the
Soozie Courter scholarship is a tuition assistance program sponsored by Pfizer that
aims to help students advance their academic goals.
Scholarships are awarded to applicants
who present the best combination of a creative and persuasive essay, excellent
recommendations and superior academic standing. For the 2015-2016 academic year, Pfizer will
award:
·       Five $4,000 graduate scholarships
·       Ten $2,500 college scholarships, including vocational
schools
William
Bowles, 2014 Soozie Courter scholarship winner, is using the scholarship funds
he was awarded to help him obtain a Master of Public Affairs degree at Columbia
University in NYC and plans to eventually pursue a PhD in Business Policy. He
ultimately hopes to work with local state governments on policies to help
improve business development in the rural south. According to William, “coping with a genetic
disorder does not mean sacrificing commitments, dreams, or career aspirations.”
To be eligible for the scholarship,
students must have either hemophilia A or hemophilia B and be a high school
senior, have a high school diploma or general education development (GED)
credential, or be currently enrolled in an accredited junior college, college
(as an undergraduate or graduate student), or vocational school. All completed
applications must be postmarked or sent via e-mail no later than May 20, 2015. To download an application, please visit here. To learn about the
inspiring stories of past winners, check out the Pfizer Facebook Page, Our Hemophilia Community.

The 18th
anniversary of the Soozie Courter scholarship illustrates the long standing
pledge by Pfizer to help patients with hemophilia further their education. To
learn more about other ways Pfizer is supporting the hemophilia community,
visit Hemophilia Village. From diagnosis to
dating, the newly refreshed site provides tips, resources, and words of wisdom
to help you navigate through the various challenges that arise throughout the
years.

This is a paid announcement by Pfizer.

Inspiring Stories from Students with Hemophilia

Laurie Kelley December 9, 2013

I just returned from India, there to check on our scholarship winners from Save One Life, my nonprofit. I was impressed to see such brave young men with hemophilia, most of whom do not often get treatment, attending college and trying to forge a future. They are succeeding. There’s so much joy in watching a young person fulfill their educational dreams!
It’s the same in the US, where so many with hemophilia are attempting to fulfill their dreams as well. Last week, I recognized
the
17 winners of the Soozie Courter Hemophilia
Scholarship, a Pfizer- sponsored tuition assistance
program. This week I am pleased to spotlight the stories of three recipients who are working
hard to achieve
their dreams while living with hemophilia.
Evan Poole never let hemophilia B
get in the way of his schoolwork or athletic pursuits. Evan’s condition forced him to challenge himself. When a
bad
bleed meant
missing school,
he always made sure to stay on top of his assignments. And he found athletic passions, such as golf, that he was able to pursue.
His perseverance has paid off.
Following in his father’s footsteps, Evan
is
a freshman studying engineering at Trine University. He was also
recently selected to take part in the National Hemophilia Foundation’s National
Youth Leadership
Institute (NYLI), based, in part, on
his significant involvement in the
hemophilia community. While Evan
initially had
some anxieties
about starting
school, including managing his condition
without his parents, he is now excited and up for the challenge!
Travis Albright, a University of Michigan senior
with
hemophilia A, first became
involved in the hemophilia
community when
he was 10 years old and attended Camp Bold Eagle in
Muskegon, Michigan, run
by
the Hemophilia Foundation
of
Michigan (HFM). His commitment to the community steadily evolved year after year as he too
became involved with the NYLI, as well
as the HFM’s MYLIFE youth
leadership group. Through his leadership work, Travis quickly became a mentor to youth with
hemophilia and
encouraged
peers to educate themselves about ways to
successfully live with hemophilia.
Through
his
experiences, Travis became an advocate for
people living with
hemophilia.
Following his passion to educate
policymakers about hemophilia
and advocate for access to
treatment, Travis landed an
internship in Washington, D.C., where
he
assisted Rep. Gary
Peters and was invited to
speak at NHF’s annual
Washington Days event. He is now working
to complete a major in public policy.
Michael
O’Connor, a graduate
student with hemophilia
B,
says he thinks of his life with
hemophilia
in two phases: before and
after he
started swimming. Swimming became both a passion and
a way to help
him
get in tune with
his
body and better manage his condition. He
swam competitively for many years and also started coaching. Michael was approached by a mother who
had seen him speak about the importance
of
staying active
and asked
if he would
give lessons to her 10 year old
son
with hemophilia. He jumped at the opportunity, and was able to
combat the uncertainty of living with
a bleeding disorder by being
a role model for others.
Michael believes that if you
are
smart about yourself and your body, you
work hard, and you do what you love, it’s going to
work out in the end. 
I second that from Michael. His mother, back in 1999, actually gave me the idea to start Save One Life, which now provides sponsorships to over 1,000 children with hemophilia in developing countries, and gives scholarships to many young men struggling to make it. It was hard work, but we love it, and we are reaping the rewards in watching young people live and thrive through their education. 
And things are
working out for Michael. He is back in the water – but in
a different way. He
is currently pursuing
a Master’s degree
in
geosciences at The University of Texas at Austin
and taking part in a research project
that often brings him to Louisiana. His work focuses on quantifying the role of coastal delta islands in filtering
out
nitrogen in the
Mississippi River before
it
reaches the Gulf of Mexico
and causes ecological
damage.
While these students have
taken different directions in
their studies and extracurricular pursuits,
they are all shining examples of overcoming challenges to achieve
a goal.
We wish them much success in the future and thank them for sharing their stories. Visit
Hemophilia Village and the
site’s Facebook page for more information on the
Soozie Courter Hemophilia
Scholarship program and to see video clips about these recipients.
Great Book I Just Read
South African Dispatches by Donald Woods
Donald Woods rocketed to fame when his young daughter was burned from an acid-laced t-shirt sent by the South African police in the 1970s, where Woods was an outspoken white editor and critic of the brutal apartheid policy of the South African government that treated black people like subhumans. This collection of his best publications, short 500-800 word articles, makes him a South African Mark Twain. Scathing wit, brilliant commentary in the fewest possible words, brimming with carefully-veiled loathing, and as the articles build on over time, direct attacks to the government jugular. The wit and clever turn of phrases disappears when his friend, Steve Biko, the leader of the black nationalist movement, is killed while in police custody. This little gem of a book is incredible; my best literary find of the year. Watch “Cry Freedom,” starring Denzel Washington as Biko, and Kevin Kline as Woods; great movie that captures the dark and brutal Afrikaners regime, and black struggle for self-rule. Five/five stars.

Recognizing the “Class of 2013” – The Soozie Courter Hemophilia Scholarship Winners

Laurie Kelley December 1, 2013

With the school
year now in full
swing, I’d like to recognize the “Class of 2013” winners of the Soozie Courter Hemophilia
Scholarship –
a group of students with hemophilia who are
dedicated
to
their education and to making
a difference in our community.
Earlier this year, I wrote about this Pfizer-sponsored tuition US assistance program, which
happens to be named after a woman
that I had the pleasure of knowing years ago.
Soozie Courter, who lived in the town next to me and who would share rides with me sometimes, worked in the hemophilia division at Genetics Institute (now at Pfizer) would
be proud of this year’s winners and the continued
emphasis placed on
supporting academic excellence
among
the hemophilia
community.
We are fortunate that there are
numerous scholarships available
to current and future US college students with bleeding disorders. Costs like tuition, books and supplies, room and board, health
insurance and transportation
can add up quickly and
the Soozie
Courter Hemophilia Scholarship program aims to help
address these challenges. Scholarships are
awarded
to applicants who present the best combination of a creative and
persuasive
essay, excellent recommendations and superior academic standing.
For the
2013-2014 academic year, Pfizer awarded
$50,000 in scholarships to 17 US graduate and undergraduate
students with hemophilia. Through
their involvement in local hemophilia chapters
and mentorships, and their commitment to future plans, these students personify what it means
to overcome
challenges to
make a difference
in
their communities.
I’d
like to congratulate all
the scholarship recipients—many of whom I have known since they were kids— and wish them much
luck in the coming
school year and
beyond!

Travis Albright                   Eric Frey 
Michael Bennett                 Alexander Kattenbaugh
Michael Bishop                  Shawn Whelan
William Bowles                 Lynden Prior
Andrew-Paul Deeb            Evan Poole
Jorge de la Riva                 Michael O’Connor
Calvin
Dutcher                  Hunter Montgomery 
Clayton Lynn                    Adam Mier
BoDean Messier 

Visit Hemophilia Village for more information on the
Soozie Courter Hemophilia
Scholarship program,
and check back here next week to learn more
about three
of
this year’s winners!
Great Book I Just Read
Desperate Passage: The Donner Party’s Perilous Journey West by Ethan Rarick [Kindle]
The Donner Party indelibly stained American history for their horrific survival stories of cannibalism in the Sierra Nevada in 1846, trapped when the short-cut and untried passage they attempted filled with 13 feet of snow. Almost all schoolchildren read about this, but what was the real story? In this well-researched and written book, Rarick reveals the dreams, desperation and daring of the 81 people who set out for California in hopes of a better life. In that group were newborns and toddlers, teens and old men. 45 survived a situation that was incomprehensible; what is amazing is that any survived. Rarick delves deeply into the writings left behind, the personalities, the situational leaders and heroes and scoundrels. Human souls in their most desperate hours, some emerged stronger; some simply gave up. All needed one another. How the children suffered… It is a profound story and a testament to American willpower and daring. A great read. Five/five stars.
ADVERTISEMENT
HemaBlog Archives
Categories