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Explore the possibilities of individualization

When I was raising a child with hemophilia over 20 years ago, all factor dosing was based on our child’s weight and severity of an injury. No one ever talked about PK. What is PK, you ask? Read below and find out! It’s essential to know if you want to individualize

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Hemophilia Fiction for Young Readers

written by Richard J. Atwood Originally published in August PEN Learning to read is a significant milestone in our personal development. As adults, we nudge young readers along in this quest. First we read to them, and later we encourage and supervise for age- and skill-appropriate reading materials. Our bleeding disorder community is fortunate to

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America’s First Family with Hemophilia

New England, 1639. Imagine that you are standing on the deck of the sailing ship Jonathan. You have just glimpsed the shore of your new home, the Massachusetts Bay Colony. Imagine the brilliant New England foliage, the bright chilly wind. Imagine your dream of farming your newly acquired land. Imagine the adventure. Now, imagine that you are the

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United by Blood

Well I’m ready for a rest! Last week I was in Orlando at NHF’s 70th annual meeting, and last night, at the New England Hemophilia Association’s Red Tie Soiree in Worcester, Massachusetts. And while there is so much happening with new products, with gene therapy coming closer, new programs for our community, and the spectacular

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Shire: a hematology company with innovation in their blood

This is a paid public announcement from Shire and does not constitute an endorsement of products or services.  When you click on the links in this blog entry, you will be directed to the Shire website.  LA Kelley Communications always advises you to be a savvy consumer when contacting any company; do not reveal identifying

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The Importance of Plasma

“Das Blut ist ein ganz besonderer Saft” (Blood is an absolutely remarkable fluid)–Goethe, in Faust It’s Plasma Awareness Week! One of my favorite celebrations, because plasma is truly the gift of life. 55% of your blood is made up of plasma, and it is a vital ingredient in many therapeutic products to treat diseases and

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Wine and hemophilia: what’s the connection?

“A bottle of wine contains more philosophy than all the books in the world.” Attributed to Louis Pasteur Was wine ever considered historically as a treatment for hemophilia? Richard Atwood, our contributing writer from North Carolina, offers this week’s blog about the history of wine as a medicine, by summarizing a book he read. Salvatore

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