Zimbabwe Haemophilia Association

“God has kept me alive…” to Serve

This essay was submitted by someone I have known since my first visit to Zimbabwe, in 2000. It is sad, and details a life of loss, and yet a life of hope. Please always keep in mind that in most developing countries, access to factor is almost impossible. If you think you have factor to donate, contact me, and I will help find a home for it. ~ Laurie, laurie@kelleycom.com

My name is Nqobizitha Ndlovu, which [is of Zulu origin] and means “Conqueror” in English. I’m 34 years old, living with hemophilia A since birth. I was born and live in Zimbabwe.

I was born into a family of four boys, of which I am the eldest. Growing up together with my siblings, life has not been rosy; it has been pain after pain, suffering because of hemophilia and life challenges as well. I am coming from a very poor family as my father used to do menial jobs to sustain us. 

Zimbabwe’s economy is in shambles and the health system is in a very bad state. The government hospitals have no diagnostic or any other important machines, or they are not working, if there is any at a single hospital servicing the whole country. No painkillers; blood transfusion is very expensive and it cost more than $100 American dollars for a single pint of blood. Only private hospitals can offer such services as diagnostics at a very high cost. That is a life of hemophiliacs in Zimbabwe.

My young late brothers and I endured a lot of pain considering our condition. We have been friends of the hospital quiet often and countless times. We have been relying on donated factor VIII ever since, with the help of Laurie Kelley. It has been a struggle in our journey of life as my parents struggled very hard to cater for our needs. 

Laurie Kelley with Khumbs, 2000

My parents and we were sharing a single bedroom house. School was another challenge for us as we used to walk for almost four hours going and another four hours coming back. That contributed to bleeding easily. Regardless of that we were excelling at our studies. 

In 1996 I lost one of my young brothers through tonsil bleeding; he was two years old and the third born. Mthokozisi was his name, which means “happiness” in English. After bleeding for three days from his tonsils, he unfortunately passed on.

The year 1998 was another bad one for me again. We had just knocked off from school. My young brother Khumbs and I, and other kids, were playing on our way home. Khumbs fell on his knee from high rocks. From there he couldn’t even move his leg as he had hit with a knee down. All the other kids left us there as I struggled to carry him on my back. We arrived home very late and Khumbs was in deep pain. He could not go to school anymore for at least two years. Khumbs’s knee developed an infection which resulted in his leg being amputated. Khumbs lost his leg like, just like that.

Nqobizitha in 2000

The year 2002 was another bad one for me again as I lost the person whom I had been relying on when I was not feeling well. My mom passed on as well. I was left broken and helpless at the same time. 

In 2003 I was still digesting the pain of losing my mother, when my father passed on. It became sorrow on top of another sorrow. I was really affected psychologically, physically and socially, and it also affected my schoolwork at the same time. I lost concentration on my studies. My health dwindled badly. 

In 2009 my younger brother Khumbs had an internal bleed which resulted in him passing on that year on November 9. Laurie Kelley had tried to source some factor VIII for him, which arrived in the evening. But he passed on in the morning. Now I had nowhere to go— no one to share my pain with as he was the closest to me.

In 2017 I was involved in a horrific incident where I lost one of my eyes. I was admitted for one and a half a months in the hospital and bled for 21 days nonstop. I almost lost my life, which became a miracle to be alive according to the doctors at Parirenyatwa,  Zimbabwe’ s biggest hospital.

During the time at the hospital it was discovered that I had developed factor VIII inhibitors. Laurie Kelley has done a lot for us that I cannot count it all. I am now using the NovoSeven which I always get from Laurie Kelley. 

Fast forward to January 2023. My one and only brother that I was left with also passed on through throat injuries and bleeding. He could not access factor VIII at the right time because he was in a remote area. That was the end of all my family members as I am now alone, with my son Brooklyn, a nonhemophiliac who is eight years old. 

I was recently voted to be the Zimbabwe Haemophilia Association as vice president. It’s a nonprofit organization. I want to serve people with hemophilia in Zimbabwe and any other bleeding disorders with all my heart. I have seen it all and I believe the high God has kept me alive up to this far to do that. We are doing all possible ways to reach out to every corner, to save some souls out there.

“Human pieces of geometry”: Brian of Zimbabwe

With Dr. Timothy Stamps, personal health advisor to the president

I’m in Zambia, Zimbabwe’s huge neighbor to the north, having a hot tea on the deck of my lodge room on the
banks of the Zambezi. The sun is a scorcher today, the air humid as if someone
dropped a huge, wet blanket over the atmosphere. While I see Africa’s beauty
before me, I’m haunted by the image of an African boy in Zimbabwe. Though I
left Zimbabwe on Wednesday, my mind still drifts back, wondering what to do.

I visited Zimbabwe from December 1-5, and Zambia from the 5th-10th, tomorrow. I’ll write about
Zambia next Sunday and finish Zim here.

ZHA members with Mr. David Mvere, director of National Blood Transfusion Services

The Health Minister was unavailable to meet, but we did get to meet with the personal health advisor to the president, the charming Dr. Timothy Stamps, who I have met twice before. We chatted about
hemophilia, and it’s good to have someone like him in government who knows about it. But even more important, we have the National Blood Transfusion Service, which is really the backbone of hemophilia care in Zimbabwe. David Mvere, the director, is an advocate for those with hemophilia—and always ready to help us when we have product to donate. I’ve met him several times over the past 12
years. We will work together to see if we cannot move hemophilia care forward in 2013. What’s needed is a national “tender,” in which the government advertises that is has so many dollars to spend on hemophilia products. The drug companies then bid for the sale, keeping their proposed price tags secret from one another so the government can take advantage of the lowest price/highest quality drug. Zim hasn’t had a tender in almost 20 years, I think.

ZHA, Laurie and Dr. Dyana (center) at Parirenyatwa Hospital

The rest of my time in Zim is spent advising the Zimbabwe Haemophilia Association on
best practices and providing an assessment of what they need to function more effectively and produce
results.
And then, there are the hospital, home and family visits. Last week I told you about Brian, an orphan who lives in a mud walled, maize-thatched circular room outside of Harare. We also stopped by the Parirenyatwa Hospital, the main public hospital in Harare, where some
patients go for treatment. Little Brian had been admitted. Simbarashe Maziveyi,
the ZHA president, chatted with him in Shona, the native language to learn more
about his case.  Simba would have made a great professional counselor; his calm demeanor, listening skills and reassurance touch everyone.

Simba, ZHA president, counseling Brian

We meet with Dr. Dyana, the Cuban
hematologist who chose to stay in Zimbabwe to help cancer and hemophilia
patients. Thankfully she did because Zim suffered for many long years without a
single hematologist in a country of approximately 500 patients.

Then we drove out into the bustling Harare traffic (that’s a good thing here! Shows progress) We visited Vincent, a 33-year-old with hemophilia, who
also happens to be a Save One Life beneficiary. He lives with his wife and small daughter in a 12×12 room—just a room—with all his worldly possessions: a small TV, some clothes, a few books. He has not worked since January, and you can see the anguish in his face. How do they eat? Where do they get money from? Save One Life gives him some cash. His sister lives nearby and helps out. But they are desperately poor. Vincent does own a bicycle, which he proudly shows me. He can bike to the treatment center when he has a bleed.
This must sound absurd to the average American with hemophilia! But it is a survival tactic in Zimbabwe. And when Vincent gets to the treatment center at the Parirenyatwa Hospital, there usually is no factor, of course.

Simba interviewing Nhamo

We drive to see Nhamo, a 41-year-old man who has come from very far away by bus. He’s had an ulceration and bleed on his left hip for months. The tissue has died and needed to be cut away. The wound can’t seem to heal and there’s no more factor. He’s now staying with his sister in a small room on someone else’s property. His crutch is homemade–a stick. He can’t work, can’t heal… this story is repeated many times in Africa. Luckily, we do have factor for him. Then he shows us his hospital bill: $2,500+ dollars.

Talk about out of pocket costs: how is
a destitute guy from a rural area ever going to pay this off? Might the hospital
refuse him treatment if he doesn’t pay? Maybe. Simba pledges to go talk to
officials on his behalf. This is really the value of going to visit patients.
The founders of the Flying Doctors of Africa (now AMFAR) once said that if you
want for patients in Africa to come to you, they’ll die; you need to go visit
them. I take that to heart.

Last stop of the day is Tanaka, from a family I have known for 11 years! Tanaka is adorable, charming, bright. And a hugger. Hugs are not a real tradition here, but Tanaka sure loves it. The whole family and I embrace one another at our reunion. They present me with a beautiful blanket with an elephant on it. Tammy from Texas sponsor Tanaka, and the money really helps him. Tanaka flashes me his trademark megawatt smile when it’s time to leave.

Tanaka gives his sponsor a gift!

On Tuesday we have a patient meeting,
with as many families as possible in attendance. Some have come from hours away
by bus. Many are in pain, seeking relief. Some of the moms are single, and
confide their fear about how to get financial relief, and how to treat bleeds.
Someone asks about a cure; another about gum bleeds.

One enormous obstacle in any developing country is infrastructure, particularly transportation. Even if factor were available, many cannot get to it as they can’t come to Harare each time their child has a bleed. I’m convinced the only solution long term is home therapy, which doesn’t exist in most developing countries. As many of the moms nod their
heads, we ask for a volunteer among them to organize a home-infusion training day. It’s a go, and the moms pledge to get together; the wife of one man with hemophilia is a nurse and she offers to be trainer. It’s a positive thing to at least start with.

On Wednesday, as I prepare to leave for the airport, Simba begs just one more visit. Often it’s when I am feeling tired, burned out just want to get on with the next leg of the journey or even go home, that the most important child is met. This happened Wednesday.

Vincent and family: out of work but not out of hope

We drive back to the Parenireyatwa Hospital, to the front of the shed where the ZHA offices are. There sits a little boy that immediately brought to mind the words of Frank Schnabel,
founder of the World Federation of Hemophilia: that patients with hemophilia were “human pieces of geometry” stuck in a wheelchair. Only this little triangle boy didn’t even have a wheelchair.
Brian is 13, but only weighs 25 kilos, about 50 pounds. Malnourished, in horrible chronic pain, he sat in the brilliant sunlight with swollen feet, four grotesquely swollen fingers, withered biceps—I could touch my forefinger and thumb around them easily—huge elbow joints (or was that an optical illusion due to the wasted musculature?). His face registered such pain; and he was wearing a Jim Morrison t-shirt, as if he knew I was a huge Doors fan and was desperate to get my attention.

My heart broke for this child, an orphan, being raised by his grandmother in a rural village, where he will no doubt be blamed for this disorder because of witchcraft. When I asked Brian to lift his arm, to see if he could at all extend it, he had to lift it at the shoulder, but lacked the muscles to lift his arm, and was prevented from
searing pain.

Brian steals our heart: he’s an orphan,  can’t walk, or lift his arms and is in constant pain

I have never seen a child tortured before, but this was as close as I could imagine to seeing it. Simba, voice calm and soothing, elicited the necessary information, and we arranged for Brian to be admitted at once, and provided the factor. In the States, Brian would face months and months of treatment, nutrition and rehab. A Facebook posting that night led to three families wanting to adopt him, and more who want to sponsor him.  We even asked Simba that night, but no. “His family could not possibly part with him,” he texted.

It’s comforting to know that Brian is loved, but it eats at us that our children in developed countries enjoy every benefit of medicine and can lead normal lives. Brian is stuck in a time-warp: care will come to Zimbabwe, of that I am sure, but not perhaps in time for this
one precious child.

Laurie, Simba speaking with Brian’s sister, “Beauty”

A great goodbye from the Youth Committee of the ZHA

Zimbabwe Rising

It’s always startling when you visit a developing country that is actually, well, developing. That’s Zimbabwe. When I visited five years ago, the country was teetering on the edge of economic collapse. Harare, the capital, seemed desolate. I half expected to see tumbleweeds blowing about, like some abandoned mining town in the Wild West. There was little fuel, little food, miles-long queues at the lone gas station that actually had gas, and long lines of people waiting at the bank doors, begging to withdraw their life savings before the currency collapsed. To pay for anything literally required bags of Zimbabwe dollars, which were fairly worthless. Each restaurant, if it had food, required a money-counting machine to “quickly” add up the plummeting currency.

The ZHA Committee Welcome

When I arrived in Harare on Saturday, I was stunned at the transformation. I was greeted by my colleagues from the Zimbabwe Hemophilia Association, three men who have hemophilia. Downtown was bustling with cars, nice cars. I had never, in the three previous visits to Zimbabwe over twelve years, seen so many people out and about. Doors were open for business and shops and restaurants were selling. Most surprising was seeing the predominant US dollar being spit out of cash registers and hands like slot machines. Zimbabwe had embraced the US dollar as a major currency, and suddenly, things got better.
But not everything: life for those with hemophilia is still harsh and unforgiving. I was about to be reminded just how much.
Reality Shows

Today, Sunday December 2, we had a meeting of the Zimbabwe Haemophilia Association (ZHA) at my hotel, the Rainbow Towers in downtown Harare. The committee members quietly presented a still grim picture of life with hemophilia: Zimbabwe is totally dependent on factor donations, and in the past year ten patients died from lack of clotting factor. Unemployment still hovers are 80% and most of the men with hemophilia cannot get jobs. With a show of hands, five of the eight at the meeting were not presently employed. There is only one hematologist in the entire country, in Harare. One. And she’s Cuban. Seriously, God bless the Cubans for sending their doctors out in the world as part of their public health policy.

No one from Harare has been to Bulawayo, the second largest city, since 2007, when I last visited there and brought two committee members with me. Reason? Lack of funding. In fact, lack of funding impacts everything. So the ZHA has plans and dreams but can scarcely carry them out. The lack of funding is demoralizing and hangs over everyone like the sword of Damocles. But the ZHA is tenacious; the members just won’t quit. As one confided, they may wish to walk away, but they would leave behind the deaths of dozens of people on their souls, for without the ZHA, no one would care about the children with hemophilia in Zimbabwe. And these children are slowly being tortured, by an ancient disease that is relentless, senseless and crippling.
Solitary Confinement: George’s Story
Each visit to a developing country is not complete until I witness: this means I go out into the “field,” whether it is literally a field, farm, megaslum, or inner city barrio; anywhere there are patients living, struggling to survive. I need to immerse myself in their world, if only for a day or even a few hours, to know how they live. How can we help if we don’t understand how they live?
Simbarashe Maziveyi accompanied me. Simba is a young man with hemophilia who is articulate, thoughtful, and as soft spoken as he is determined to change hemophilia’s destiny in Zimbabwe. He is president of the ZHA and has severe factor VIII deficiency. I met him first in 2000, during my first trip to Zimbabwe, when he was only 19, a fresh-faced college student. We’ve been in touch ever since as he was groomed to one day assumes leadership. Simba recommended that we go to see George.

Just 20 minutes outside the electrifying energy in Harare, a subtler tragedy emerges. We drive past roadside shops and trading centers, colorful and crude. Here, vendors hawk the items they purchased in South Africa to sell to pedestrians; and so many in Zimbabwe seem to walk everywhere. On the outskirts of the capital, the highway eventually stretches before us as we pass “Goat’s Place,” a sad, miles long cemetery, simple and rural, dotted with grey headstones, so nicknamed because next to it is the market where goats are sold. Roads taper down to dirt roads on our quest to find George, a 20-year-old with hemophilia. The sky, so unnoticed in the sensory overload of Harare, becomes startling large and piercing blue with puffy clouds, like an anesthetic beckoning to look up and not down at the suffering.

Zimbabwe means House of Stones

We stop briefly and in hops a smartly-dressed lady and her daughter: this is Judith, George’s sister, who will show us the way. George doesn’t have an actual address. As we turn down another dirt road, Simba points out the distant city ahead, Chitungwaiza. As I struggle with the Shona language pronunciations, he tells me “Chi Town” will do nicely. It reminds me of the scene from “The Mummy” when the adventurers first spy the far off city of Hamunaptra, where their fate awaits. Like military ramparts, large hills of dazzling rocks both distract from and guard the city. I have a sudden urge to put on my rock climbing gear.

Drought stricken Maize

A sharp left and we rattle down an uneven dusty road, our driver Andrew taking care not to damage his car. We park and hop out. It’s hot. The dirt crunches beneath our feet and I realize we’re stepping on dehydrated maize. Despite being the rainy season, the ground is thick and hard, cracked and muted. The maize is either ankle high when it should be thigh-high, or it’s nothing, dead before it could even sprout. I feel like I am on the edge of the Sahara; how did the topography change so drastically so quickly?

We walk a bit to two thatched, circular dwellings; this is where George lives. He hobbles out of the mud home, on one crutch, left leg permanently bent at an almost 45 degree angle. Simba tells me the one crutch was an improvement; when they first met, George was using a hoe as a crutch.

Laurie interviews George

George is smiling, displaying a gorgeous, perfect set of teeth, like most Zimbabweans. But he gets shy, and almost embarrassed. Perhaps because of our age differences, or that I am an American come to visit him. Simba’s comfortable style puts him at ease. We interview George to learn more.

George in front of his house

He lives in these two tiny, mud dwellings with his 17-year-old brother Simba. One is for cooking only. The other, which cannot be more than eight feet in diameter, is for sleeping. His parents are dead. He has four other brothers and two sisters. His sister Judith, the one who came with us, oversees his care. But she lives four kilometers from him. How does he get by? He farms a little, seemingly impossible given the state of his leg. He simply cannot walk without a crutch and barely can walk with one. A nearby well supplies water; there is no electricity. (Try to imagine life with hemophilia, without any electricity. Just try)

George is solemn as he shares. This is a young man who has suffered. Loss, pain, deprivation and uncertainty about a future.

George and the bombed out bridge

What does he do when he has a bleed? He must hobble to his sister’s place, four kilometers away. As if that wasn’t bad enough, he must cross a footbridge. The bridge is in ghastly disrepair. Originally the land was owned by a white farmer, as much of the land in “Rhodesia” used to be. Independence came for black Zimbabwe in 1980, when Mugabe came to power. In 2001, during the very week I was there, Mugabe decided that there would be land “reform.” Black citizens could now reclaim their lands from white farmers, even those who had legally held family farms for 100 years and had provided the agricultural revenue that earned Zimbabwe “the breadbasket of Africa.” The guy who owned this land I stood on was one of them, and he was not happy. Before he abandoned his land to the black citizens who came to claim it, he left a little present behind. He bombed the stone footbridge. George now has to navigate this treacherous passing each time he has a bleed.

He then spends the night at his sister’s, and in the morning goes to Harare, to wait at the hospital for help. By then a lot of damage has been done to the bleeding joint.

George and mentor Simba

The family hopes to get George started in some business, maybe selling chickens. Poultry sells well in Zim, and it wouldn’t require the manual labor that farming does.

Before we leave, the rest of George’s brothers show up. One has perhaps had a bit too much of “Zed,” the potent, illegal brew that is bootlegged from Mozambique to the disenfranchised in Zim. It’s a killer, literally, and is nicknamed “Zimbabwe Early Death.” Later, when Simba and I stop at a grocery store to pick up staples as a gift for the next family we visit, two men loaded on Zed start harassing the women in the cashier line. In their hands is a bottle of whiskey—as if. I have to push them back, out of my private space as they are breathing down my back literally and making comments. Usually Zimbabweans are the most civil and polite of people I have ever met, but Zed makes these two guys dangerously uninhibited.
Time to go and visit another family, and George’s visit puts a sad touch to the day. But a decision is made: we need to get him enrolled into Save One Life, our nonprofit that sponsors children with hemophilia in developing countries. If ever there was a candidate for Save One Life, it’s George.

George awaits a Sponsor

Yet there’s a touching ending to the day: I hand George $100, a fortune, and a gift from Cindy of Hawaii. Cindy volunteered her honorarium in one of our market research studies, to give “to someone in need.” It’s nice to know a young mom of a child with hemophilia in Hawaii can impact a young man who is almost in solitary confinement half way around the world, in a rural village in Zimbabwe.

As we pull away in the car, Andrew, the driver begins peppering Simba with intelligent questions about hemophilia, from the symptoms to the genetics. And finally, “How did you make it so far, without much medicine?”
Simba smiles, as he is not one to complain. “Faith,” he says. “Mostly faith.” A family of chickens cross the road in front of us. The hen has eight little chicks in tow, but the last one, for whom we have to stop, is lame in one leg, and cannot walk well. As it struggles over the drought-stricken ruts in the field, I say, “Like George.” We smile sadly and drive on.

Khumbs


Thanksgiving Day last Thursday was celebrated all across America but it was a sad day in Zimbabwe. We lost another young man to hemophilia, Khumbs.

Khumbs

Khumbs was very special to me. I first heard of him in 1998, when he was only eight years old. He was about to lose his leg after an ankle bleed became infected. It was a risky procedure because there was (and still is) no factor available in Zimbabwe. We tried to ship product as quickly as possible, to try to save his leg, but it was too late. In 2000 I traveled to Zimbabwe, and met little Khumbs at his home in Bulawayo, Zimbabwe’s second largest city, which always reminds me of New Orleans. He was charming, with a big smile. His mother had died recently. Loss, then more loss. Zimbabweans are used to losses.

In 2001 we held the first-ever hemophilia camp in Zimbabwe, named after one of the founders of the Zimbabwe Haemophilia Association, Norman Mubaiwa. 65 children who all come from impoverished homes attended. It was held at the Hwange Safari Park, and for the first time in their lives, the Zimbabwe kids got to see their native animals. Zebras, giraffes and wildebeests all came to the watering hole at dusk. Khumbs followed me around everywhere at that camp, smiling his infectious smile. On spindly crutches and one leg, he scuttled about, always tailing me. He didn’t speak English, only his native Ndebele. When I would turn and look at him, he’d get shy and smile. Later on, I saw him sitting by the small in-ground pool. I motioned for him to go in but he was too shy. Zimbabweans are so polite and sensitive. When I insisted, he finally believed me and next thing I knew, he shucked off his pants and jumped into the pool in his underwear, not at all conscious of his stump. He had a blast!

I took a photo of Khumbs at that camp, and his smile summed up the joy I have seen in children worldwide when they go to camp. He was beaming. I took that photo and had it digitally enlarged and processed like an oil painting. I hung it on my wall so that Khumbs’ smile was with me every day.

I returned to Zimbabwe in December 2007. Conditions in the country had deteriotated unbeliveably. 80% unemployment, one million percent inflation, food shortages. I returned to Bulawayo, not an easy task given the lack of gasoline; it’s a five hour ride from the capital. We visited Khumbs again. He was so tall! And so healthy looking! His wonderful uncle took Khumbs and his brother in, after their father died. More loss. Khumbs was perched on the same pediatric crutch that he had been using, which was now patched. After our happy visit, I went off to look for a new crutch.

We found Khumbs a sponsor and he became our first enrollee in Save One Life. This program provides financial resources each month for children with hemophilia in the developing world. His sponsor was Jill Smith, a hemophilia nurse from Australia, who had traveled with me to Zim in 1999. She had met Khumbs, too.

How shocking to awaken on Thanksgiving morning to a text message from Zim saying: “Khumbs is gone. We are devastated.” More loss, always more loss.

Khumbs’ picture will forever stay on my office wall, a snap shot of a time when we gave a brave little boy who had lost almost everything the most wonderful time of his life–hemophilia camp. And now, we are the ones left with the loss.

(If you’d like to sponsor a child like Khumbs, please visit http://www.saveonelife.net/ Despite his loss, we are saving lives!)

Love: From A (America) to Z (Zimbabwe)

If you read about my travels to Zimbabwe in December 2007, you’ll remember I went to the home of Elton Sare, a 17-year-old with hemophilia who was suffering from a grotesquely swollen right knee. I met Elton’s entire family, including brother Emmanuel, age 11, who also has hemophilia. Elton lives in poverty: his father died ten years ago. His mother earns only about $27 US a month selling vegetables. His older brother Sylvester was sick with tuberculosis, quarantined in the kitchen, sleeping on the cold, hard floor.

John updates Elton’s shots

Elton haunted me for months, and I tried to find help for him–a hospital that might offer free care. I had just about given up, until I met UN Goodwill Ambassador Juliet Hanlon, who persuaded me to keep trying, day after day. Juliet gave me renewed faith and hope. I started asking again.

When I mentioned Elton’s case to Dr. Len Valentino (chief of Pediatric Hematology and Director of the Rush Hemophilia & Thrombophilia Center at RUSH Hospital University Medical Center in Chicago) at the NHF annual meeting in November, he told me he might be able to help. Just get Elton here and we would appeal to the generosity of the RUSH community to help.

What’s happened since then is nothing short of a miracle. Elton is here now, in Chicago. He just arrived Saturday morning, after 30 hours in transit, traveling alone, with three plane changes. The gracious staff at South Africa Airways ensured he arrived safely. What courage Elton has!

You cannot imagine the challenges to get him here. When Dr. Valentino offered the surgery, Providence, as they say, started moving. We found a donor for plane tickets–Neil Herson, president of ASD Healthcare. Wyeth agreed to provide BeneFIX for the surgery. My dear friends Chris and Angela Castaldo, who have a young son with hemophilia (and two others!) opened their home to Elton for a month. A volunteer from Zimbabwe living in Chicago, Emma, helped meet him at the airport, to make him feel more at home. Even the UN got involved when it looked like Elton’s visa might be denied. A collection was taken through Save One Life to raise money for the passport, visa and traveling expenses–$2,900 raised in two days!

Elton comes from a country that is collapsing: there is 80% unemployment, over one million percent inflation, the world’s highest. And a raging cholera epidemic that has killed over 3,700. Food and gas are in short supply. Elton went shopping today at a mall: his eyes wide, he was overwhelmed seeing all the stores, the sites, the sounds. But not so overwhelmed that he didn’t know what to say when asked if he wanted a CD: “Usher.”

I learned through Chris that Elton’s brother Sylvester died of TB last summer. And his older sister died just in September of meningitis. Loss is common in countries like Zimbabwe. I wonder how his mother ever found the courage to let her 18-year-old son board a plane and fly half way around the world to be with strangers in a strange country.

But Elton is adjusting as only a teen can. He loves the cold weather, enjoys movies on the TV, and is warming to his host family. It must be so strange. He had his first infusion tonight for a bleed in his right elbow. Tomorrow (Monday) he has an array of tests at RUSH, and on Thursday, he gets his operation for his synovitis. We’ll keep you posted on how he is doing. You can also read Chris’s website: http://www.chris-tocentric.com for a first-hand report.

Thanks to everyone who is helping Elton! Please consider making a contribution, so that we can buy Elton new clothes, a suitcase, some CDs, and art supplies (he loves to paint in watercolor!). We want to stock him up before he heads back March 28 to Zimbabwe, where these things are not available, and where life is the greatest gift.

Go to www.SaveOneLife.net and click “Donate.” It’s that easy, and will mean so much to Elton.

HemaBlog Archives
Categories