Some patients do it for free factor. Others do it to try to help advance science. Chris Bombardier, from Denver, I just learned summited Mt. Aconcagua in Argentina (22,000+ feet!) and he is on an experimental long-lasting factor. He chose to do it to advance science and see how the product works. He’s proving it works the hard way!
There has probably not been such a clogged pipeline for new products coming to market (we hope) in maybe 20 years. Patents have expired, which protected products from competition, and now manufacturers are all competing to get new products into the biggest hemophilia market on earth: the United States of America.
Here’s one I just read about:
Great Book I Just Read
Why is It Always About You? by Sandy Hotchkiss
You know those people who hog the whole conversation, grab the limelight [often from you], make you their personal audience, and don’t listen or even seem to care about what’s happening with you? They could have Narcissistic Personality Disorder. More than just being talkers, they may latch on to powerful or attractive people to make themselves look or feel better; slowly chip away at another’s self-esteem to build themselves up; and go blank even when the person in front of them is in severe emotional pain. They lack empathy. It’s all about them, their agenda, their needs and their ego. We call them emotional vampires because they can leave you depleted and drained. And yet, they are smart and charming typically, and can draw you in, and back again. Run for the hills when you discover someone has this insidious personality, or get professional help to support you through a relationship with them. This excellent book will help you recognize a narcissist, and teach you how to protect your own self against their manipulations. Three/five stars.