The HERO Initiative: Improving Understanding of the Burden of Hemophilia on Families focuses on our discussion in Workshop 2 around how hemophilia can affect the entire family in different ways, including emotionally, financially, and professionally. This video includes the following US HERO Summit participants:
· Mary-Jane Frey, Nurse Coordinator, Children’s Hospital of Michigan
· Chris Guelcher, Nurse Practitioner, Children’s National Medical Center
· Dana Kuhn, PhD, President and Founder, Patient Services, Inc.
· Dawn Rotellini, Director of Chapter Development and Training, National Hemophilia Foundation
· Michelle Witkop, Bleeding Disorders Nurse Practitioner, Northern Regional Bleeding Disorder Center
The HERO Initiative: Working to Understand and Improve Pain Management in Hemophilia focuses on our discussion in Workshop 3 around the impact of pain on the daily lives of people with hemophilia and approaches to better evaluate and manage this common complication. The following US HERO Summit participants appear in this video:
· Mary-Jane Frey, Nurse Coordinator, Children’s Hospital of Michigan
· Neil Frick, Vice President for Research and Medical Information, National Hemophilia Foundation
· Chris Guelcher, Nurse Practitioner, Children’s National Medical Center
· Michelle Witkop, Bleeding Disorders Nurse Practitioner, Northern Regional Bleeding Disorder Center
To view all the videos, visit the Novo Nordisk YouTube Channel , and please feel free to share them with your friends, family, and organization members!
Great Book I Just Read
The Boys on the Boat by Daniel Jay Brown
1 thought on “HERO: One who is revered for sacrifice, skills, dedication…”
The sorrow, shame, guilt, regret, etc. of not having been able to keep my family together is almost too much for a man to bear. Hemophilia had a big part in our family troubles. Whatever weaknesses there were in our characters, relationship, and marriage were amplified by the burdens of having a son with hemophilia.