|Old generation and new: Kunaal and Albert|
|Rural Fiji: en route to town of Ba|
Mr. Albert Perumal, who at age 65, is oldest known person with
hemophilia in Fiji. He has hemophilia A. The drive took us into the rural
areas, where the main roads are well maintained, but the side roads degenerate to
dirt and rocks, as in many if not most developing countries.
|Laurie Kelley, Randy Curtis, Albert Perumal, Kunaal Prasad
and Dr Julia Phillips
car port, in which everyone sat on couches, next to the car. After polite introductions, we settled down on the chairs and couch, and listened to Albert’s
|Three men with hemophilia: Randy, Albert, Kunaal|
for years as an office clerk, including 15 years as an accountant, back when
there were no computers, he noted. When computers were introduced to do
accounting, he lost his job, as he did not know how to operate them. He then
bought a vehicle, and became a taxi driver. He’s now retired, and has a pension
of $30 a month. $1 US a day… that is
all he has to live on.
hemophilia, three of whom died. One was a twin brother of his. One brother died
at age 40 of kidney failure. Albert’s twin was the first to die, at age 15 from
a simple tooth extraction. The third brother was in a motor vehicle accident at
age 30 when he passed.
has survived so long. He has hemophilia A but doesn’t know the severity. When
he is in severe pain, he goes to Lautoka Hospital, which will offer free care
as a government hospital.
factor a lot. Now, they cannot, as there has been stricter customs laws. Albert
made us all cringe, but especially Kunaal, our new patient leader, when his
wife offered that when that donated factor expired, he threw it away. We all
politely informed him that it is fine and never, ever to throw away factor. We discussed
ways to share that factor with others, through the newly formed Fiji
|Albert uses “slippery cabbage” to treat his bleeds|
tell, as he may start bruising after toddling about or crawling.
brought out tea and biscuits, and we all sipped the red-hot tea and nibbled the
cookies, as a light rain fell. It was a refreshing visit, and an honor to meet
who the oldest known person with hemophilia in Fiji.