Additional Resources: Periodicals
OneVoice
Save One Life
saveonelife.net
Bimonthly. E-zine reports on partner organizations, camps, activities funded by Save One Life, the international nonprofit founded by Laurie Kelley that provides sponsorships to children with bleeding disorders in impoverished countries.
Factor Nine News
Coalition for Hemophilia B
hemob.org
Quarterly. Easy-to-read scientific info, research, community events related to hemophilia B.
Dateline Federation
Hemophilia Federation of America (HFA)
hemophiliafed.org
Quarterly. Healthcare info and news about bleeding disorders, government, healthcare events, clinical studies, innovative programs.
The Source
Plasma Protein Therapeutics Association (PPTA)
www.pptaglobal.org
PDF download only
Quarterly. Info about the global plasma protein therapeutics industry. Interviews with key leaders; articles on safety and innovation; stories about patients and plasma donors; US and European legislative and regulatory topics.
Lifelines for Health
Comprehensive Health Education Services (CHES) comphealthed.com
First national publication for people with inhibitors; educational, inspirational tool for families and healthcare providers.
The Edge
Genentech
genentechhemophilia.com
Biannual. Stories from the community about lifestyles, including challenges overcome. News from Genentech, and more.
HemAware
National Hemophilia Foundation (NHF)
hemaware.org
Quarterly. magazine of NHF. Articles on medical research and treatment; families and children; community events; people making a difference.
