Additional Resources: Periodicals
Save One Life
Bimonthly. E-zine reports on partner organizations, camps, activities funded by Save One Life, the international nonprofit founded by Laurie Kelley that provides sponsorships to children with bleeding disorders in impoverished countries.
Factor Nine News
Coalition for Hemophilia B
Quarterly. Easy-to-read scientific info, research, community events related to hemophilia B.
Hemophilia Federation of America (HFA)
Quarterly. Healthcare info and news about bleeding disorders, government, healthcare events, clinical studies, innovative programs.
Plasma Protein Therapeutics Association (PPTA)
PDF download only
Quarterly. Info about the global plasma protein therapeutics industry. Interviews with key leaders; articles on safety and innovation; stories about patients and plasma donors; US and European legislative and regulatory topics.
Lifelines for Health
Comprehensive Health Education Services (CHES) comphealthed.com
First national publication for people with inhibitors; educational, inspirational tool for families and healthcare providers.
Biannual. Stories from the community about lifestyles, including challenges overcome. News from Genentech, and more.
National Hemophilia Foundation (NHF)
Quarterly. magazine of NHF. Articles on medical research and treatment; families and children; community events; people making a difference.