Additional Resources: Periodicals
HemAware
National Hemophilia Foundation
www.hemophilia.org
Bimonthly. Newsletter of largest US hemophilia nonprofit. Articles on bleeding disorder medical research and treatment; articles for families; reports on community events.
Dateline Federation
Hemophilia Federation of America (HFA)
www.hemophiliafed.org
Quarterly. News magazine of second largest national hemophilia nonprofit. Healthcare information about bleeding disorders, government, healthcare events, innovative programs.
The Villager
Pfizer
www.hemophiliavillage.com
Hard copy or e-newsletter.
Bimonthly. Information about hemophilia treatment; tips for living an active life; inspirational stories from people living with hemophilia; latest programs and services from Pfizer.
One Voice
Save One Life
www.saveonelife.net
Quarterly. Newsletter of Save One Life, a nonprofit founded by Laurie Kelley, which provides individual child sponsorships to children with bleeding disorders in impoverished countries.
The Source
Plasma Protein Therapeutics Association
(PPTA)
www.pptaglobal.org
Quarterly. Information about the global plasma protein therapeutics industry. Includes interviews with key leaders; guest articles on safety and innovation; stories about patients and plasma donors; US and European legislative and regulatory topics.
Hemophilia World
World Federation of Hemophilia (WFH)
www.wfh.org
Triannual. Articles on WFH activities and what hemophilia organizations around the world are doing to improve care.
Post Script Informer
Patient Services, Inc. (PSI)
www.uneedpsi.org
Quarterly. Newsletter of nonprofit that helps people with certain chronic illnesses or conditions locate suitable health insurance coverage and access ways to satisfy expensive co-payments. Up-to-date information on insurance changes for people with chronic disorders.
Factor Nine News
Coalition for Hemophilia B
www.coalitionforhemophiliab.org
Quarterly. Brief newsletter features latest news and treatment for hemophilia B; community events.
eNotes
National Hemophilia Foundation
www.hemophilia.org
Monthly. Electronic newsletter informs the community on current medical breakthroughs, blood safety, advocacy updates, industry information, community news.