Additional Resources: Periodicals

OneVoice Save One Life saveonelife.net Bimonthly. E-zine reports on partner organizations, camps, activities funded by Save One Life, the international nonprofit founded by Laurie Kelley that provides sponsorships to children with bleeding disorders in impoverished countries.

Factor Nine News

Coalition for Hemophilia B
hemob.org

Quarterly. Easy-to-read scientific info, research, community events related to hemophilia B.

Dateline Federation

Hemophilia Federation of America (HFA)
hemophiliafed.org

Quarterly. Healthcare info and news about bleeding disorders, government, healthcare events, clinical studies, innovative programs.

The Source

Plasma Protein Therapeutics Association (PPTA)
www.pptaglobal.org
PDF download only

Quarterly. Info about the global plasma protein therapeutics industry. Interviews with key leaders; articles on safety and innovation; stories about patients and plasma donors; US and European legislative and regulatory topics.

Lifelines for Health

Comprehensive Health Education Services (CHES) comphealthed.com

First national publication for people with inhibitors; educational, inspirational tool for families and healthcare providers.

 

The Edge

Genentech
genentechhemophilia.com


Biannual. Stories from the community about lifestyles, including challenges overcome. News from Genentech, and more.

 

HemAware

National Hemophilia Foundation (NHF)
hemaware.org

Quarterly. magazine of NHF. Articles on medical research and treatment; families and children; community events; people making a difference.

 

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