Additional Resources: von Willebrand Disease
A Guide to Living with von Willebrand Disease
Laureen A. Kelley and Paul Clement
LA Kelley Communications, Inc.
2002, 2006, 2012
New edition coming in 2021!
Free to families and patients
kelleycom.com
Fourth edition of the world’s first book on the world’s most commonly inherited bleeding disorder. Topics include learning to cope with VWD, inheritance, the medical system, treatment, women’s issues, health insurance. Complete resource guide and real-life stories. Sponsored by CSL Behring.
National Outreach for von Willebrand (NOW)
Arizona Hemophilia Association
arizonahemophilia.org
National educational conference for individuals and families living with VWD. Info on new medical advances, tools to better manage VWD, sharing with others. Travel expenses paid. Funded by a grant from CSL Behring.
The Hemophilia, von Willebrand Disease & Platelet Disorders Handbook
Hemophilia of Georgia
hog.org
Comprehensive online guide to living with a bleeding disorder; written from the perspective of the person with a bleeding disorder, but also for family members.
VWD Connect Foundation
vwdconnect.org
Formed to serve the bleeding disorder community, the foundation focuses on severe VWD. Provides education and connection for patients and families; supports research to benefit the VWD community.
